CIBR Advocate

8/6/2019 CIBR Advocate

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July 2011

Advocate Staff Renée L. Cruea, MPA President

Michael Kalutkiewicz Vice President of Government Affairs

Roxanne Yaghoubi Policy and Programs Manager

Charisse Balangawan

Angela Quick

Sadaf Samay Assistant Editors ……………….. Steering Committee

William G. Bradley, Jr, MD, PhD Chair, Department of Radiology University of California San Diego Chairman

Steven Seltzer, MD Chair, Department of Radiology

Brigham and Women’s Hospital RR President

Sholom Ackelsberg General Manager, Academic ResearchPortfolio GE Healthcare

Pat A. Basu, MD, MBA Faculty (On Leave) Stanford University

Jim Beckett Vice President, Clinical Research Philips Healthcare

R. Nick Bryan, MD, PhD Chair, Department of Radiology University of Pennsylvania HealthSystem

N. Reed Dunnick, MD Chair, Department of Radiology

University of Michigan Medical Center Daniel Garen, JD, LLM Vice President, Healthcare Policy andClinical AffairsSiemens Healthcare

Steven Haberlein Vice President, Sales FUJIFILM Medical Systems USA, Inc.

James Jorkasky Executive Director National Alliance for Eye and Vision Research

Q.Y. Ma, PhD President and CEO TIME MEDICAL Systems, Inc.

Richard Mather, PhD Senior Manager, Clinical Programs Toshiba Medical Research Institute

Oran Muduroglu CEO Medicalis Corporation

Martha Nolan, JD Vice President, Public Policy Society for Women's Health Research

Lenny Reznik Director, Enterprise Imaging andnformation

Agfa HealthCare Corporation

Sheila Ross Special Counsel Lung Cancer Alliance

Paul Tuma Regional Vice President Nuance Communications, Inc. Nuance Healthcare Division

The Stakeholder AdvocacDivision of the AcademyRadiology Research

Coalition for Imaging and Bioengineering Research www.imagingcoalition.org

Director of NIH Headlines CIBR’s Imaging Showcase on Capitol Hill

Renée Cruea, CIBR President

Washington, DC – On May 19 th , the Coalition for Imaging and BioengineeringResearch (CIBR) sponsored the second annual imaging technology showcase inthe Rayburn Foyer entitled: The Impact of Imaging Research, Technology &Patient Care .

The event provided an opportunity for attendees to visit nine unique technologydisplay areas, each represented by a patient advocate, academic researcher andmanufacturer. With displays focusing on areas such as cutting - edge computedtomography (CT), novel magnetic resonance imaging (MRI), or decision support software (which assists radiologists in administering the right scan), congres-sional guests were able to gain a deeper understanding of how imagingresearch is changing the detection, diagnosis and treatment of disease.

In addition to the technologies being presented, the event was highlighted by a number of special guestswho have been champions, advocates and leaders in the ield of research. Academy of Radiology ResearchVice President, Richard Ehman, MD , from the Mayo Clinic introduced Senator Amy Klobuchar (D- Ma long - time champion for research. Sen. Klobuchar spoke about the need for America to recommit to aninnovation economy led by the National Institutes of Health (NIH). Continued on page 2

Francis Collins, MD, Ph

Academy President’s Welcome

Steven Seltzer, MD

Welcome to this edition of theCIBR Newsletter!

The past few months have beenvery busy ones for CIBR.Members of CIBR includingseveral Chairs of leading academ-ic radiology departments spent several days in Washington, DCthis Spring, visiting with sevenNational Institutes of Health(NIH) Directors, spending timewith our legislators on CapitolHill and participating in educational Congressionalbrie ings which highlighted the power and poten-tial of federally funded research in imaging andbioengineering to improve patient care.

During our time on Capitol Hill we briefedmembers of Congress and their staffs about theimportance of maintaining at a minimum the cur-rent level of support for NIH in general and imagingresearch in particular. We reminded them about some of the tremendous research news of the past year, including the dramatic results of the NationalLung Screening Trial, which showed a 20 percent reduction in deaths from lung cancer through theuse of low - dose CT. We also shared information

about federally funded imaging research going onin their districts, particularly efforts to improvepatient care, lower costs and manage radiation ex-posure.

A highlight of our visit was a medical technology‘expo’ held in the foyer of the Rayburn House Of ice

building. Exhibits displayed new imaging technolo-gies and highlighted collaboration between patient advocacy groups, industry, and academia. Senator Amy Klobuchar (D- MN) and NIH Director FrancCollins both made gracious and positive remarksabout the value of biomedical imaging research.

As CIBR continues to implement initiatives that educate our audience, we will be monitoring thefederal budget debate and doing our best to rallysupport for research funding. We have beenworking with Director Collins’ of ice to express ouropinions about a role for imaging in the proposed

new Institute for NIH, the National Center forAdvancing Translational Sciences (NCATS).

In addition, we have been in contact with Dr.Harold Varmus and the leadership of the NationalCancer Institute (NCI) to ensure a good outcomefor the American College of Radiology ImagingNetwork (ACRIN), one of the NCI’s ten cooperativeclinical trials groups.

Thank you as always for your help and support forCIBR.

Coaliton for Imaging and Bioengineering Research1029 Vermont Avenue, NW, Suite 505 ● Washington, DC 20005 ● imagingcoali on.org

Chair of Radiology,Brigham & Women’s

Hospital



Senator Amy Klobuchar (D - MN)

Mr. Arthur Cassano , a patient advo-cate who survived a brain aneurysmdue to a timely and advanced imagingdiagnosis, then provided personal tes-timony about his own survival thanksto the radiologists at the University of Virginia. Mr. Cassano passionatelycalled on policymakers to raise the lev-el of support for life sciences research,and to consider his story as an exampleof how research is literally saving livesand reducing long - term care.

The keynote speaker for the event was the Director of the Nation-al Institutes of Health, Dr. Francis Collins, MD, PhD . Dr. Collinshighlighted some of the recent accomplishments of researchers,such as the success of the National Lung Screening Trial.

The Director also described hisvision for a proposed new centerat NIH, the National Center forAdvancing Translation Sciences(NCATS), and delineated howadvanced imaging techniquescan expedite promising new

treatments for patients. Heconcluded by encouragingcongressional support for re-search so that it remains a na-

tional priority, particularly at a time when so much basic science

is being translated into actual treatments andcures.

The President of the Academy of RadiologyResearch, Steven Seltzer, MD , of Brighamand Women’s Hospital in Boston, closed byapplauding Dr. Collins’s vision and leadership,and promised that the imaging community isready and willing to help bring faster cures topatients.

Overall, approximately 300 people attended

the medical showcase. Attendees included amix of Senators, Representatives, congres-sional staffers, patient advocates, industry,academic leadership and NIH staffers.

July 2011

www.imagingcoalition.org

Francis Collins, MD, PhD visitswith Q.Y. Ma, PhD, CEO of TIME

MEDICAL Systems, Inc.

Mr. Cassano passionatelycalled on policymaketo raise thelevel of support for life sciencesresearch, anto consider his story asan exampleof how research isliterally saving livesand reducinlong - term

care.

“The CIBR annual imaging showcase is an opportunity for our audience to hear collectively fromall members of the imaging community in one setting, and to develop a more complete vision of the impact imaging technology has on patient care.” – Renée Cruea, MPA, President, CIBR

Welcome to our Coalition newsletter. It is important to remember that acoalition is an alliance among groups that join forces for a common interest.Coordination among similar groups such as those within the imaging communityis a critical ingredient for achieving change through education and advocacy on abroad scale. While the more than 140 members of CIBR have differing advocacyagendas, there are clearly areas of overlap as we come together in support of imaging research.

In this newsletter we have highlighted for you some of our most effectivecollaborative initiatives. The value of a diverse and strong Coalition has neverbeen more important than it is today.

The mission of CIBR is to create and maintain a supportive environment for imaging research.Awareness of the direct impact and value imaging brings to patient care assists in our efforts togarner support for consistent federal investment in imaging research.

Thank you for your continued support of CIBR as a patient group, academic department, society,ndustry partner or Congressional staffer. Please feel free to contact us anytime with questions

about our activities or membership.

Renée Cruea,President, CIBR

I n T h is Iss ue

Acade m y P res ide n t ’s

We lco me— p. 1

C I B R Med ica l Tec h no log y

S ho wcase — p. 1 & 2

A R R AC Rece p t io n— p. 3

I A S LC S ta te me n t o n L u ng

Ca nce r Sc ree n i ng— p. 4

P AG S po t l ig h t— p. 5 - 6

A l z he i me r ’s B r ie f i ng— p. 7

Leg is la t i ve U pda te— p. 8

I nd us t r y Ne ws— p. 9

Me m be rs h i p L is t— p. 10 &

Me m be r A p p rec ia t io n — p.

Continued from page 1

A endees gather in theRayburn Foyer



On Capitol Hill, Top U.S. Academic RadiologyDepartments Convene to Showcase Cutting -

Edge Academic Imaging Research

Renée Cruea, MPA, President

On May 18, 2011, the Academy of Radiology Research’s AcademicCouncil sponsored its second annual congressional receptionfocusing on the latest advancements in imaging research. Chairsand representatives from leading academic radiology depart-ments presented posters which displayed a snapshot of theirnstitution’s ongoing imaging research projects. Members of

Congress, staff and patient advocates were able to meet some of heir State’s top academic researchers, and staff and Members

were encouraged to talk with poster - presenters about theiresearch and actually participate in the process by which sciences vetted and disseminated.

The popular event illed the Gold Roomof the Rayburn House Of ice Building,with an attendance of 185 Congressionalstaffers, patient advocates, NIH staffersand industry representatives. The over-all attendance was up 55% from 2010.

More than 20 Academic RadiologyDepartments, including twelveDepartment Chairs, provided detailedresearch posters depicting cutting - edgeimaging research at their institution.Guests enjoyed wine, hors d’oeuvres andan ice cream bar as they networked andread the research posters. For many Congressional members andstaff, it was their irst opportunity to meet Chairs from their homestate or district’s institutions. Academic research Chairs andpatient advocates were easily identi ied by their large lanyardname tags that clearly stated their name, state and University orpatient advocacy group af iliation.

Guest speakers included Martha Nolan,Vice President for Public Policy of theSociety for Women’s Health Research,James Jorkasky, Executive Director of the National Alliance for Eye and Vi-sion Research and Special CounselSheila Ross from the Lung Cancer Alli-ance, who is also a lung cancer survi-vor. We were honored to hear fromthese three CIBR Steering Committeemembers as they articulated to a fullroom why imaging research was im-

portant to their patient constituency.

This reception was a lead - in to the CIBR medical technologyreception and showcase on May 19 th. Over the course of threedays, Academy, Academic Council and CIBR leadership met withNIH leadership at seven Institutes, Academic Chairs met withtheir elected Representatives and the CIBR Steering Committeeheld a spring meeting to discuss and plan further advocacyinitiatives.

CIBR and Academy Leadership: William Bradley Jr. MD, PhD(UCSD), Jonathan Lewin, MD (Hopkins), Carolyn Meltzer, MD(Emory), Renée Cruea (CIBR), Steven Seltzer, MD (Brigham &

Women’s), Richard Ehman, MD (Mayo), Mike Kalutkiewicz (CIBR)

James Jorkasky (NAEVR) &Martha Nolan, JD (SWHR)

July 2011




July 2011

LCA Praises International Statement on CT Screening, While NIH Lung Cancer TrialShows 20 percent Reduction in Deaths due to CT

By Michael J. Kalutkiewicz

Vice President of Government Affairs

On nearly the same day that the Lung Cancer Alliance (LCA) praised a position paper on computed tomography (CT) screeningssued by the International Association for the Study of Lung Cancer (IASLC), the National Institutes of

Health (NIH) issued a press release describing a 20 percent reduction in deaths from lung cancer throughhe use of low - dose CT. CIBR is proud to work with the LCA, one of its patient advocacy groups and Steering

Committee members, to advocate for the use of biomedical imaging research to assist lung cancer patients.

The IASLC position paper noted that CT screening is the irst test of any type to demonstrate signi icant eductions in lung cancer mortality through early detection and called for international cooperation and

national screening programs around the world to re ine the process.

Laurie Fenton - Ambrose , LCA President & CEO said the IASLC's consensus statement signals ‘a newbeginning.’ "The question is no longer does CT screening work, but how do we bring this bene it to those at high risk as safely, ef iciently and equitably as possible, and IASLC's call for international cooperation oneaching that goal as expeditiously as possible is a very positive and important development," she said.

The paper from the IASLC was released at nearly the same time as the primary research data from theNational Lung Screening Trial, which was funded by the NIH, was also published in the New England Jour-nal of Medicine. Through the NLST, scientists have found a 20 percent reduction in deaths from lung canceramong current or former heavy smokers who were screened with low - dose helical CT versus thosecreened by chest X - ray.

“We are thrilled that the lung cancer detection paradigm is changing for the better because of imaging,” saidCIBR President Renée Cruea . “We hope that LCA is successful in its outreach as it strives to reducemortality associated with lung cancer. The imaging community, through CIBR, will continue to collaboratewith LCA, a valuable partner, to raise public awareness with regards to the value, contribution and patient mpact of CT.”

Fenton - Ambrose praised the IASLC's call for better integration of public health messages for both tobaccocontrol and lung cancer early detection. "The majority of new lung cancer cases are former smokers whowere not being warned that they could still be at risk years, or even decades, after quitting," she said.

LCA recently opened the irst publicly available website designed to help people answer questions about CTcreening, such as "Am I at risk?" and "Where should I go?" The website can be accessed at

www.screenforlungcancer.org .

Lung Cancer Alliance ( www.lungcanceralliance.org ) is the only national non - pro it organization dedicated to providing support andadvocacy for those living with or at risk for lung cancer. LCA is committed to reversing decades of stigma and neglect by empoweringhose with or at risk for lung cancer, elevating awareness and changing health policy.

“The question isno longer doesCT screeningwork, but how do we bring thisbene it to thoseat high risk assafely, ef icientlyand equitably as possible, and IASLC's call for international cooperation onreaching that goal asexpeditiously as possible is a very positive and important development ."

- Laurie Fenton Ambros


https://dnbweb1.blackbaud.com/OPXREPHIL/Link.asp?link=567515








ZERO – the Project to End Prostate Cancer works with theCoalition for Imaging and Bioengineering Research (CIBR) tohelp advance imaging research for prostate cancer. Advancesin imaging are needed to improve doctors' ability to diagnoseand determine appropriate treatment options for their pa-tients. CIBR plays an important role by keeping its partnersup to date on important advances in imaging research andproviding networking opportunities with other members inthe imaging community.

ZERO is committed to not only reducing prostate cancer oralleviating the pain from the disease, but also to ending it.ZERO seeks a future where all men who have been diagnosedwith prostate cancer will be cured or be able to manage theirillness with good quality of life. ZERO also works to providemen with the support that they need to minimize physicaland emotional suffering and cope effectively throughout theircancer journey.

ZERO provides comprehensive treatment information to

patients, education to those at risk, and free prostate cancerscreenings throughout the country. Through programs suchas the Drive Against Prostate Cancer, the Great ProstateCancer Challenge, and the Summit to End Prostate Cancer,ZERO is working toward our goal of ending prostate cancer.

The Drive Against Prostate Cancer is the only nationwide mo-bile prostate cancer screening program. The program hastested more than 110,000 men since 2002, saving more than7,000 lives. To celebrate over a decade of saving lives, a chari-table foundation has recently challenged ZERO to double thenumber of men tested through the Drive Against ProstateCancer. Contributions from individuals and companies to theDouble the Drive Matching Campaign will be matched dollarfor dollar, up to $1 million, and will be used to expand out-reach by building a new testing vehicle and doubling thenumber of testing days.

Continued on page 6

Representatives from Are You Dense Advocacy, Inc. ™ and Are You Dense, Inc.™ were delighted to participate in the2nd annual CIBR Medical Showcase. JoAnn Pushkin, Directorof Government Relations for Are You Dense Advocacy, Inc.and Dr. Nancy Cappello, President and Founder of Are YouDense, Inc., found the Showcase’s spotlight on new technolo-gy, research initiatives and advocacy associations a valuableand productive coalition of imaging enthusiasts to align with.

Are You Dense, Inc.™ was founded in 2008 by Dr. NancyCappello after her advanced stage breast cancer diagnosisfollowing a decade of “normal” mammograms. It was the irst time that she was informed she had dense breasts, and that density masked the ability of the mammogram to ind hercancer. The goals of Are You Dense, Inc.™ are to inform thepublic about the risks of dense breast tissue, and to educatethe public about the limitations of mammography to detect cancer in women with dense breast tissue. Through the advo-cacy efforts of Dr. Cappello, Connecticut became the irst state

to mandate insurance coverage for whole breast ultrasoundscreening as an adjuvant tool to mammography for womenwith dense breast tissue. In 2009, Connecticut became theirst state to mandate the communication of breast densityinformation to the patient through the mammography report.

Are You Dense Advocacy, Inc. ™ grew out of the grassrootsefforts of D.E.N.S.E. ™ (Density Education National Survivors’

Effort). It began as a group of women each advocating forMandatory Breast Density Disclosure laws within their ownstates. Connecticut’s groundbreaking law became the rallyingpoint for this group of breast cancer survivors - all of whomreceived a later stage diagnosis than necessary because theywere not told about their own breast density, nor that densityinterfered with the effectiveness of their mammograms. Inaddition to active grassroots efforts in many states, there arecurrently two states with bills pending, California and Texas

Continued on page 6

July 2011




Are You Dense, Inc.— Continued from page 5

have Inform laws on their books, and a federal bill is in the draft phase. The CIBR showcase was theperfect venue to focus our efforts on supporting Density/Inform federal legislation.

Are You Dense Advocacy (AYDA) fully supports a patient’s knowledge and access to the right screening sothat an early stage diagnosis is attainable. AYDA’s organizational objective is equal access to earlydetection for the 40% of women with dense breasts. Our mission aligns with the mission of supportingimaging researchers and their quest for earlier diagnoses, less painful and less invasive procedures,improvement in patient care, and cost savings.

Finally, it was of particular value to collaborate with other advocacy organizations and professionals inattendance. The Rayburn Foyer was the perfect location for a mix of technology, advocacy and policydiscussions. The display and table mix of different disciplines and areas of expertise meant traf ic wasconstant and steady. We look forward to attending next year.

ZERO Cancer— continued from page 5

The premier men's health race and event series in America – The Great Prostate Cancer Challenge – wascreated by ZERO to bring together athletes, cancer survivors, physicians, caretakers, family members, and friends in the ight against prostate cancer. In 2011, ZERO is hosting run/walk events in 27 cities nationwide with the mission of raising awareness and f unds forresearch and screening.

The Summit to End Prostate Cancer is an annual conference focused on legislative and policy issues that impede research and a ccessto care. This year’s Summit will take place on September 20 and 21 in Washington, D.C. In addition to informational sessions, ZEROstaff will provide training in grassroots advocacy, the legislative process, fundraising and communications.

ZERO works directly with the federal government and in concert with various coalitions to increase critical research funding, protect patients and their families from harmful policy changes and educate Members of Congress and other decision makers about prostatecancer and the need for early detection. Since 1996, the organization has worked to increase federal research dollars for prostatecancer from $85 million to nearly $500 million.

ZERO is leading the ight to end prostate cancer – a disease that affects one in six men – by promoting greater awareness for earlydetection and leveraging public resources for life - saving research and new treatments for those with the disease.

“The CIBRshowcase wasthe perfect venue to focusour efforts onsupportingDensity/ Inform federallegislation”.

- Are You Dense, I

If you are a Patient Advocate member of CIBR and would like to befeatured in the PAG spotlight, please contact Roxanne Yaghoubi at

[email protected]

Photos from our Medical Technology Showcase!

July 2011




CIBR Sponsors Brie ings on Alzheimer’s Research, Imaging Advances

By Roxanne Yaghoubi & Charisse Balangawan

On June 22, 2011, the Coalition for Imaging and Bioengineering Research (CIBR) co - hosted two congressional brie ings onadvances in imaging technology and Alzheimer’s disease research. Held on both the Houseand Senate sides of the Capitol, these brie ings were cosponsored by the Alliance for Aging

Research, the Alzheimer’s Foundation of America, the Cure Alzheimer’s Fund, and USAgain-stAlzheimer’s, as well as Senator Warner (D - VA) and Congressman Smith (R - NJ). Thesetypes of collaborations play an important role in CIBR’s education and advocacy efforts bygiving Members of Congress and congressional staffers the opportunity to learn moreabout the research that is supported by the NIH.

The presentations focused on the progress that researchers have made towards usingbiomedical imaging to diagnose – and someday, potentially treat – Alzheimer’s disease. Theincidence and associated costs of Alzheimer’s disease has been on a steady incline due tothe rise in the aging population. According to Daniel Perry, President and CEO of theAlliance for Aging Research, in the next 18 years 10,000 adults a day will turn 65 years old.As a result of this “Silver Tsunami,” Alzheimer’s research now needs more attention than

ever before.

Richard Hodes, MD, the Director of the National Institute on Aging (NIA), emphasized theimportance of using imaging to detect early brain changes and track the effectiveness of treatment.Neil Buckholtz, PhD, the Chief of the Dementias of Aging Branch of the Divi-sion of Neuroscience at the NIA, followed by showing part of a documentaryentitled “The Forgetting: A Portrait of Alzheimer’s.” This video depicts thework of researchers from the University of Pittsburgh and MassachusettsGeneral Hospital on Pittsburgh Compound B - a radioactive compound that,when coupled with positron emission tomography (PET) scans, allows re-searchers to see the location and distribution of the beta amyloid plaque de-posits that are associated with Alzheimer’s.

Following the video, Srinivasan Mukundan, MD, PhD, the Section Chief of Neu-

roradiology at Brigham and Women’s Hospital, discussed the importance of using imaging to help fami-lies of Alzheimer’s disease patients make better decisions about treatment options. Since symptoms of Alzheimer’s can mimic other diseases, Dr. Mukundan also discussed the importance, particularly in alarge hospital, of differentiating Alzheimer’s patients from other patients with less severe forms of mildcognitive impairment. In addition, during the brie ing in the House of Representatives, CongressmanSmith spoke about the efforts of the bipartisan Congressional Task Force on Alzheimer’s disease.

The brie ings concluded with a presentation by Sue Peschin from theAlzheimer’s Foundation of America, who highlighted the need forincreased funding for the NIA so that it can continue to support thisimportant research.

CIBR was pleased to help facilitate this series of brie ings and to

highlight the hope that imaging research is giving to Alzheimer’spatients and their families. In the upcoming months, CIBR plans tohold similar presentations on other topics of interest to itsmembership. If you would like to work with CIBR on this initiative,please contact Roxanne Yaghoubi ([email protected]).

Dr. Richard Hodes (NIA), Sue Peschin (Alzheimer’s Founda on of America), Dan Perry (Alliance for Aging Research), Dr. Neil Buck-

holtz (NIA), Dr. Srinivasan Mukandan (Brigham & Women’s) ,Renée Cruea (CIBR)

Congressman Chris Smith (R - NJ)

Dr. Srinivasan Mukandan

Dr. Richard Hodes

July 2011




Legislative Update

By Michael J. Kalutkiewicz

Vice President of Government Affairs

Washington is all about the big picture thesedays. The discussion surrounding de icit reduction is characterized by slogans about “national priorities” and ensuring that thecountry is headed in the “right direction.”Some leaders want trillions in spendingcuts. With such paradigm - changing dia-logue, advocates for federal public healthinitiatives rightly wonder if their programswill continue to exist in their current form(or at all) under the new iscal pathforward.

Despite the doom and gloom of budget cuts, a number of people in Washington are saying the right things when it comes to federal investment in health research.117 Representatives recently signed a letter that circulatedamong the House calling for “at least” $32b in funding for theNational Institutes of Health (NIH) – approximately a 2 percent increase. In the Senate, 41 Senators signed on to a letter that de-scribed NIH as “our best hope” for treating or curing debilitatingdisease, and said that Congress must sustain its commitment toresearch. But in reality, the number of champions in each cham-ber falls well short of the votes needed to ensure that the budget for inding cures does not receive its second cut in as many years.

The anticipation of budget reductions is already taking its toll onthe funding decisions of a number of Institutes at the NIH.Despite their scienti ic merit, the prospect of declining budgetscan make it very dif icult for NIH Directors to invest in multi - yearprojects – particularly those with costly imaging components.This is discouraging for advocates of diseases that are on theverge of cures, but need clinical validation for therapeutics ornovel treatment modalities. An Institute’s appetite for investingin a ive - year, multi - site clinical study suddenly wanes as theprogram directors brace for a 10 to 15 percent cut in purchasingpower in the fourth and ifth years of the award.

In a national dialogue characterized by spending cuts, publichealth advocates have been told by traditional supporters on theHill and within the Administration to become iscal policyexperts, in order to explain how public health programs canstimulate the economy and provide a return on the taxpayers’investment. Advocates have pointed to the President’s recent bipartisan De icit Reduction Commission which stated, “we must

invest in education, infrastructure, and high - value research anddevelopment to help our economy grow, keep us globallycompetitive, and make it easier for businesses to create jobs.”

Federal Reserve Chairman Ben Bernanke also noted last monththat federal investment in research is a building block foreconomic growth.

So while the overall budget debate in the U.S. may seem to implya hammer will be taken to the discretionary portion of the budg-et, it appears that it’s more likely that the tool will be a scalpel.Many on the right still note that the private sector is still not ableto increase research and development budgets, and that the roleof the federal government in thisarea has perhaps never beenmore important. But will thesesame Members of Congress

eventually reemerge as thepublic champions they havebeen in the past?

Not necessarily. The last electionbrought forth a large contingent of extremely iscally conserva-tive members, and it is likelytheir ranks will continue togrow in 2012. One RepublicanCongressman on the HouseAppropriations Committeerecently said that he is currently

“ ighting off a primary opponent that is to the right of him.”Having been a strong supporterof the NIH for years, the memberis characteristic of many electedof icials on both sides of theaisle: their championship for disease research has not waned,but in the current political environment, their public support forfunding programs is tepid. Many members may not be signingpublic letters in support of NIH, but they will likely still considerit a priority program when it comes time to vote on spendinglegislation.

So while the political environment seems hopeless at times, andcongressional support for disease research seems uninspiring,we in the advocacy community must stay active. We must contin-ue to be an echo chamber for the patients we represent and theeconomists that tout the ability of research to move this countryforward economically. The ight over spending will likely becomeincreasingly partisan and the dialogue may break down. But CIBR will be working with the larger patient advocacy communi-ty to ensure that through all the dialogue, inding cures and ad-vancing science will be a national priority.

July 2011

“In the Senate, 41

Senators* signed on to a letter that described NIH as“our best hope” for treating or curing debilitatingdisease, and said that Congress

must sustain itscommitment toresearch”.

“117 Representatives* recently signed a letter that circulated among the House calling for “at least” $32b in funding for the National Institutes of Health – approximately a 2%increase”.

* To nd out if your Member of Congress signed the le er insupport of NIH, please e - mail Michael@imagingcoali on.org.


Michael Kalutkiewicz,VP, Government

A airs



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CIBR’s industry partners are all working on their owninitiatives regarding biomedical imaging research.

Check out these links to learn more!

July 2011


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CIBR Member Organizatons

AdMeTech Foundation

Agfa HealthCare Corpora on

Alliance for Aging Research

Alliance for Prostate Cancer Preven on

Alpha - 1 Associa on

Alpha - 1 Founda on

Alzheimer’s Founda on of America

American Associa on for Women Radiologists

American Associa on of Physicists in Medicine

American Brain Tumor Associa on

American College of Nuclear Medicine

American College of Radiology

American Ins tute for Medical and Biological Engineering

American Ins tute of Ultrasound in Medicine

American Osteopathic College of Radiology

American Pain Founda on

American Parkinson Disease Associa on

American Registry of Radiologic Technologists

American Roentgen Ray Society

American Society of Emergency Radiology

American Society of Neuroradiology

American Society of Radiologic Technologists

Are You Dense, Inc.

Are You Dense Advocacy, Inc.

Arthri s Founda on

Associa on for Research in Vision and Ophthalmology

Associa on of Community Cancer Centers

Associa on of Educators in Imaging and RadiologicSciences

Associa on of Program Directors in Radiology

Associa on of University Radiologists

Beth Israel Deaconess Medical CenterDepartment of Radiology

Biotechnology Industry Organiza on

Blinded Veterans Associa on

Brain Injury Associa on of America

Brigham and Women’s Hospital

Department of Radiology

Cancer Schmancer, Inc.

Case Western Reserve University, University HospitalsHealth System, Department of Radiology

Children With Diabetes Founda on

Christopher & Dana Reeve Founda on

Colon Cancer Alliance

Community Oncology Alliance

Cooley’s Anemia Founda on

COPD Founda on

The Daniella Maria Arturi Founda on

Duke University School of MedicineDepartment of Radiology

Emory University School of MedicineDepartment of Radiology and Imaging Sciences

Fibroid Relief

Fight for Sight

Fight Colorectal Cancer

First Candle

FORCE: Facing Our Risk of Cancer Empowered

FUJIFILM Medical Systems USA, Inc.

GE Healthcare

Georgetown University Medical CenterDepartment of Radiology

Hydrocephalus Associa on

Hypertrophic Cardiomyopathy Associa on

Interna onal & American Associa ons for

Dental Research

Interna onal Eye Founda on

Interna onal Society for Magne c Resonancein Medicine

Interna onal WAGR/11p Dele on Syndrome Associa onIntracranial Hypertension Research Founda on

Johns Hopkins Medicine, The Russell H. MorganDepartment of Radiology and Radiological Science

Juvenile Diabetes Research Foundation

Kidney Cancer Associa on

Lighthouse Interna onal

Lung Cancer Alliance

Lung Cancer Circle of Hope

MaleCare

Mallinckrodt Ins tute of Radiology, WashingtonUniversity In St. Louis

Massachuse s General Hospital


Mayo Clinic, Department of Radiology

Medical College of Wisconsin, Milwaukee WI


Medicalis Corpora on

Memorial Sloan - Ke ering Cancer CenterDepartment of Radiology

Men’s Health Network

Mental Health America

Mount Sinai School of Medicine


Na onal Alliance for Eye and Vision Research

Na onal Cervical Cancer Coali on

Na onal Lung Cancer Partnership

Na onal Pa ent Advocate Founda on



Na onal Spinal Cord Injury Associa on

New York University Langone Medical Center


Northwestern University, Feinberg School of Medicine,Department of Radiology

Nuance Communica ons, Inc.,Nuance Healthcare Division

Parkinson’s Ac on Network

Philips Healthcare

Prevent Cancer Founda on

Prostate Cancer Interna onal

Prostate Health Educa on Network

Pulmonary Fibrosis Founda on

Radiological Society of North America

RSNA Research and Educa on Founda onSiemens Healthcare

Society for Imaging Informa cs in Medicine

Society for Pediatric Radiology

Society for Women’s Health Research

Society of Chairs of Academic Radiology DepartmentsSociety of Computed Body Tomography and Magne c

Resonance

Society of Interven onal Radiology

SNM (formerly Society of Nuclear Medicine)

Society of Radiologists in Ultrasound

Society of Skeletal Radiology

Society of Thoracic Radiology

Society of Uroradiology

Susan G. Komen for the Cure

Taking Control of your Diabetes

TIME MEDICAL Systems, Inc.

Toshiba Medical Research Ins tute

Tuberous Sclerosis Alliance

University of California, Irvine Medical Center

Department of Radiological Sciences

University of California, Los AngelesDepartment of Radiological Sciences

University of California, San Diego School of MedicineDepartment of Radiology

University of California, San Francisco

Department of Radiology & Biomedical ImagingUniversity of Kentucky Chandler Medical Center


University of Louisville, Department of Radiology

University of Michigan, Department of Radiology

University of MinnesotaDepartment of Diagnos c Radiology

University of North Carolina at Chapel HillSchool of Medicine, Department of Radiology

University of Pennsylvania, Department of Radiology

University of Pi sburgh Medical CenterDepartment of Radiology

University of Texas Medical School at HoustonDept. of Diagnostic & Interventional Imaging

University of Utah, Department of Radiology

University of Washington, Department of Radiology

University of Wisconsin - Madison


Us TOO Interna onal

Von Hippel—Lindau Disease Family Alliance

Voices Against Brain Cancer

Yale University School of MedicineDepartment of Diagnos c Radiology

ZERO—The Project to End Prostate Cancer

CIBR Member Organizatons

CIBR Welcomes New Members!

To join CIBR, please contact Mike Kalutkiewicz at

[email protected]



Agfa HealthCare Corporation

Alliance for Aging Research

Alzheimer’s Foundation of AmericaAre You Dense, Inc.

Are You Dense Advocacy, Inc.

Brain Aneurysm Foundation

Brigham and Women’s Hospital

Colon Cancer Alliance

Emory University School of Medicine

FUJIFILM Medical Systems USA, Inc.

GE Healthcare

Hip Hop Stroke

Indiana University School of Medicine

Johns Hopkins Medicine

Lung Cancer Alliance

Massachusetts General Hospital

Mayo Clinic

Medicalis Corporation

Memorial Sloan - Kettering Cancer Center

National Alliance for Eye and Vision Research

National Patient Advocate Foundation

National Stroke Association

Nuance Communications, Inc., Nuance Healthcare Division

NYU Langone Medical Center

Philips Healthcare

Saint Luke’s Brain and Stroke Institute

Siemens HealthcareSociety for Pediatric Radiology

Society for Women's Health Research

TIME MEDICAL Systems, Inc. Toshiba Medical Research Institute

University of Arizona College of Medicine

University of California, Irvine Medical Center

University of California, Los Angeles

University of California, San DiegoUniversity of California, San Francisco

University of Louisville School of Medicine

University of Michigan Medical School

University of Pennsylvania School of Medicine

University of Pittsburgh School of Medicine

University of Southern California School of Medicine

University of Texas Medical School at Houston

University of Utah School of Medicine

University of Virginia School of Medicine

University of Washington School of Medicine

University of Wisconsin - Madison

Von Hippel - Lindau Disease Family Alliance

Mallinckrodt Institute of Radiology, Washington University

Yale University School of Medicine

ZERO- the Project to End Prostate Cancer

CIBR Advocate

Documents

Transcript of CIBR Advocate