Niamh Malone , Brainey App

Self Recovery and Rehabilitation Platform

Niamh Malone.Brainey App.

Self Recovery and Rehabilitation Platform

Clinical Nurse Specialist in stroke rehabilitation.

Brain Injury Feb 2013.

Adjusting to life.

Background

3 months.

Common themes- fatigue, dizziness, mood, insomnia and QOL.

Based on rehabilitation experience with goals- weekly, monthly goals.

Psychological Motivational Programme

Still had deficits.

Public Awareness.

Referred to NRH.

Created a new job.

6 months

Structure of app.

Budget.

Focus Groups.

Support Groups.

Link between Medical and survivor.

Hospitals involved.

Recovery after Brain Injury

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Over 100 downloads.

Feedback.

A year later.

Recovery Journey.

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Person centred.Quality of Life.Own pace.Everyone individual and different.A journeyDischarge plan.

Self Recovery app. (1-6 months after discharge) Realise deficits and link with services in community.Going back to work.Not going back to work.

6 months onwards.Mild cognitive and communication impairments.Persons way of adapting to real life at home. What works for them- broken down into different apps.

Hobbies and pastimes.Social aspect.Re integrating back into community life, living their life.

Works with technology companies in identifying areas of unmet need for developing technology- based solution amongst patients of all ages in TBI, ABI, and developed BI.

2 year contract- BraineyApp and University of Cambridge/ hospitals/ community affiliated to it.

Unpatented technical information, information related to inventions, discoveries, concepts, methodologies, procedures, research, development and testing and trials, manufacturing process, quality control data, analysis reports and submission not on public domain.

Outcome measures and data protection.

Funding- to be decided.

NIHR Brain Injury Healthcare Technology Cooperation University of Cambridge..

Media publicity.

Technologist.

Buy in a number of acute hospitals.

Buy in from Stroke Council.

National Stroke Study Day and Stroke Survivors Day

Material design.

Structure.

More interactive.

Common themes broken down- accurate outcome measures.

More choices and decisions.

Progress.

Prototype

Self Recovery App and website.

Person interface - iPhone and Android.

(free end user)

Consultant/ General Practitioner/

Healthcare Professionals interface- responsive website.

( licence, monthly, 6 monthly, yearly).

People after mild traumatic brain injury (concussion) up to severe traumatic brain injury, strokes and post brain surgery.

To see if people understand the app and its purpose.

Understand how to get in and out of sections.

Focus and concentration.

Feedback.

Testimonals.

Focus groups Prototype

Surgery:Cerebral angiograms for different brain procedures e.g. coiling, thrombectomy.Brain surgery e.g. clipping.Lobectomy.

Neurological disorders.Early stage Alzheimer's disease.

Brain tumours.

Early stage dementia.

Dyslexia.

Encephalitis.

Epilepsy.

Meningitis.

Migraines.

Multiple Sclerosis.

Parkinson's disease.

Vestibular migraines.

Acquired brain injury.

Traumatic brain injury.

Recovery:Psychological.MotivationalFatigue.Insomnia.Headaches.Dizziness.Positive thinking.Sensitivity to light and colour.Irritability and impatience.

Common everyday deficits:Memory short term and long term, Amnesia- not recognising places.Communication- reading (too many words, writing (difficulty writing) and talking (right words not coming out).Processing information.Attention / Distraction.One thing at a time.Thinking/Concentration.Decision making.Expressing thought.Inability to sense time.Sequencing, problem solving and decision making.

Mental IllnesssBipolar.General Anxiety Disorder.Depression.Addiction.

Journey.

Self Recovery and Rehabilitation following Concussion (general and sports).

Self Recovery and Rehabilitation Multi-disciplinary discharge care plan.

Cognitive Rehabilitation in the Community.

Hobbies and pastimes.

Self Recovery and Rehabilitation Platform.

Thank you.

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Niamh Malone , Brainey App

Healthcare

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