Minimaler Datensatz Swiss Stroke Registry Stand: 18. Mrz. 2015 · 2017-01-19 · Minimaler...
Transcript of Minimaler Datensatz Swiss Stroke Registry Stand: 18. Mrz. 2015 · 2017-01-19 · Minimaler...
Minimaler Datensatz Swiss Stroke Registry Stand: 18. Mrz. 2015
Im Swiss Stroke Registry werden obligatorische Variablen (minimaler Datensatz) und fakultative Zusatzvariablen erfasst. Ob eine Variable obligatorisch oder
fakultativ ist hängt auch vom Index-Ereignis (sog. „Qualifying Event“) ab.
Patienten, welche innerhalb der letzten 7 Tage vor Eintritt eines der folgenden 8 Qualifying Events hatten, werden im SSR erfasst:
(1) Ischemic stroke (2) Transient ischemic attack (3) Intracerebral hemorrhage (4) Retinal infarct (5) Amaurosis fugax (6) Acute ischemic myelopathy (7) Cerebral sinus vein thrombosis (8) Non-traumatic subarachnoid hemorrhage Im Folgenden werden die obligatorischen Variablen für diese 8 Qualifying Events aufgelistet. Die Variablenbezeichnungen, wie sie in der Eingabemaske des SSR
erscheinen, sind fett gedruckt. N.B. das SSR wird in Englischer Sprache geführt.
Leo Bonati
Für das Swiss Stroke Registry Steering Committee
18. März 2015
1. Ischemic stroke
Variable name
Section Variable description Variable description / format
General information
id_site Site ID
birth_date Date of birth (dd.mm.yy)
id_hospital_case Hospital case ID (case number in hospital)
id_event Event ID
Variable name
Section Variable description Variable description / format
event_type Type of event (Criteria for new SSR entry Each hospital or emergency room admission for cerebrovascular event <7 days before admission, or occurring in hospital. If several events, select the most severe.
(1) Ischemic stroke / (2) Transient ischemic attack / (3) Intracerebral hemorrhage/ (4) Retinal infarct / (5) Amaurosis fugax / (6) Acute ischemic myelopathy / (7) Cerebral sinus vein thrombosis / (8) Non-traumatic subarachnoid hemorrhage
zip Zip code of legal residence (4 digit number)
non_swiss No Swiss residency (tick box)
arrival_date Date and time of arrival at hospital (dd.mm.yy) (hh:mm)
age Age (yyy.yyy)
sex Sex (1) Male / (2) Female
Prehospital phase and admission
Symptom onset
onset_known Time of symptom onset known (0) no / (1) yes / (3) wake up
onset_time Time of symptom onset or last proof of good health
(dd.mm.yy) (hh:mm)
wakeup_time Time of awakening (dd.mm.yy) (hh:mm)
referral Referral (1) Emergency service (144) / (2) General Practitioner / (3) Self referral / (4) Other Stroke Unit or Stroke Center / (5) Other hospital / (6) In-hospital stroke
referring_unitcenter Patient referred from:
transport Type of transport (1) Ambulance / (2) Helicopter / (3) Other (taxi, self, relatives, friends...)
Clinical assessment
NIH_admission NIH Stroke Scale on admission (0-41) continuous (xx)
mca Vascular territory affected (select at least one, multiple are possible)
MCA (1) no / (2) right / (3) left / (4) bilateral
aca ACA (1) no / (2) right / (3) left / (4) bilateral
pca PCA (1) no / (2) right / (3) left / (4) bilateral
vertebrobasilar Vertebro-basilar (1) no / (2) right / (3) left / (4) bilateral
Brain imaging on admission
firstimage_type First brain imaging type (1) CT / (2) MRI / "If no internal brain imaging done:" (3) External CT / (4) External MRI
firstimage_result First brain imaging result (1) No acute lesion / (2) Ischemia / (3) Ischemia with hemorrhagic transformation / (4) Acute intracranial hemorrhage / (5) Other finding
Biometric data
Variable name
Section Variable description Variable description / format
bp_syst First systolic blood pressure in hospital (mmHg)
continuous (xxx)
bp_diast First diastolic blood pressure in hospital (mmHg)
continuous (xxx)
height Height (cm) continuous (xxx)
weight Weight (Kg) continuous (xxx)
bmi BMI continuous (xx.x)
glucose Serum glucose (mMol/L) (first value after arrival) continuous (xx.x)
Acute Treatment (multiple are possible)
treat_antiplatelet Antiplatelet drugs (0) no / (1) yes
treat_anticoagulant Anticoagulants (therapeutic dose) (0) no / (1) yes
treat_ivt Intravenous thrombolysis with rtPA (0) no / (1) yes / (2) started before admission
ivt_start Start time (dd.mm.yy) (hh:mm)
onset_ivt_time Onset to treatment time (hh:mm)
door_ivt_time Door to treatment time (hh:mm)
treat_iat Intra-arterial treatment (0) no / (1) yes
iat_start Time of groin puncture (dd.mm.yy) (hh:mm)
onset_iat_time Onset to groin puncture time (hh:mm)
door_iat_time Door to groin puncture time (hh:mm)
anaesthesia Anesthesia (1) None / (2) Conscious sedation / (3) General anaesthesia
iat_rtpa Intra-arterial rtPA used (0) no / (1) yes
iat_uk Intra-arterial Urokinase used (0) no / (1) yes
iat_mech Mechanical treatment (0) no / (1) yes
iat_end End of intra-arterial treatment (dd.mm.yy) (hh:mm)
treat_study Study treatment (treatment other than above administered in study protocol)
(0) no / (1) yes
treat_none No acute treatment (0) no / (1) yes
hospitalization Initial hospitalization
(1) Monitored stroke unit in-house / (2) Non-monitored stroke unit in-house / (3) Other intermediate or intensive care unit in-house / (4) General ward in-house / (5) Referral to other Stroke Unit or Stroke Center / (6) Referral to other hospital or care institution / (7) Outpatient management
other_unitcenter Patient referred to:
Variable name
Section Variable description Variable description / format
etiology_ischemia Etiology (modified TOAST criteria) (select only one option)
(1) Large artery atherosclerosis (>=50% stenosis) / (2) Cardiac embolism (excluding PFO or other rare cardiac causes) / (3) Small vessel disease / (4) Cervical artery dissection / (5) PFO (only cause and <3 vascular risk factors) / (6) Other determined etiology / (7) More than one possible etiology / (8) Unknown etiology despite complete evaluation / (9) Unknown etiology with incomplete evaluation / (10) Stroke or TIA mimic
Medical history
Past cerebrovascular events
stroke_pre Ischemic stroke or retinal infarction (0) no / (1) yes
tia_pre TIA or amaurosis fugax (0) no / (1) yes
ich_pre Intracranial hemorrhage (0) no / (1) yes
Cerebrovascular risk factors (known or newly diagnosed)
hypertension Hypertension (>140/90 mmHg repetitively) (0) no / (1) yes
diabetes Diabetes (without glucose intolerance) (0) no / (1) yes
hyperlipidemia Hyperlipidemia (treatment or LDL>2.6mmol/L) (0) no / (1) yes
smoking Actively smoking (or stopped <2 years ago) (0) no / (1) yes
atrialfib Atrial fibrillation/flutter (>1 documented episode)
(0) no / (1) yes
followimage_type Follow-up brain imaging
(1) None / (2) CT / (3) MRI / (4) CT and MRI
Hospital course / outcome
NIH_24h NIHSS 24h after admission continuous (xx)
ich_sympt_hospital Symptomatic intracranial hemorrhage (0) no / (1) yes
ich_sympt_hospital_date Date of intracranial hemorrhage (dd.mm.yy)
stroke_hospital Recurrent ischemic stroke in hospital (0) no / (1) yes
stroke_hospital_date Date of stroke (dd.mm.yy)
death_hospital Death in hospital (0) no / (1) yes 3-month follow-up form does not open if
cea_symptomatic Endarterectomy for symptomatic carotid stenosis
(0) no / (1) yes
Date of endarterectomy (dd.mm.yy)
cas_symptomatic Stenting for symptomatic carotid stenosis (0) no / (1) yes
Date of stenting (dd.mm.yy)
pfo_closure PFO closure (0) no / (1) yes
Date of PFO closure (dd.mm.yy)
decompression Decompressive craniectomy (0) no / (1) yes
Variable name
Section Variable description Variable description / format
discharge_destination Discharge destination (1) Home / (2) Rehabilitation hospital / (3) Other acute care hospital / (4) Nursing home, palliative care center, or other medical facility
discharge_date Date of hospital discharge (or death in hospital)
(dd.mm.yy) (hh:mm)
duration_hosptial Duration of hospital stay (dd:hh)
3-Month outcome
followup_date Date of follow-up (dd.mm.yy)
followup_mode Mode of follow-up (1) Clinical / (2) Telephone or other contact with patient / (3) Telephone or other contact with relative
mRS_90days mRS 3 months after stroke onset (0) 0 = No symptoms / (1) 1 = No significant disability despite symptoms / (2) 2 = Slight disability / (3) 3 = Moderate disability / (4) 4 = Moderately severe disability / (5) 5 = Severe disability / (6) 6 = Dead
Recurrent cerebrovascular events after discharge, ≤90 days of initial event (multiple events are possible)
stroke_followup Ischemic stroke including retinal stroke (0) no / (1) yes
stroke_followup_date Date of stroke (dd.mm.yy)
ich_followup Intracranial hemorrhage (0) no / (1) yes
ich_followup_date Date of intracranial hemorrhage
(dd.mm.yy)
death_followup Death (0) no / (1) yes
death_follwoup_date Date of death (dd.mm.yy)
2. Transient ischemic attack
Variable Name
Section Variable description Variable description / format
General information
id_site Site ID
birth_date Date of birth (dd.mm.yy)
id_hospital_case Hospital case ID (case number in hospital)
id_event Event ID
event_type Type of event (Criteria for new SSR entry Each hospital or emergency room admission for cerebrovascular event <7 days before admission, or occurring in hospital. If several events, select the most severe.
(1) Ischemic stroke / (2) Transient ischemic attack / (3) Intracerebral hemorrhage/ (4) Retinal infarct / (5) Amaurosis fugax / (6) Acute ischemic myelopathy / (7) Cerebral sinus vein thrombosis / (8) Non-traumatic subarachnoid hemorrhage
Variable Name
Section Variable description Variable description / format
zip Zip code of legal residence (4 digit number)
non_swiss No Swiss residency (tick box)
arrival_date Date and time of arrival at hospital (dd.mm.yy) (hh:mm)
age Age (yyy.yyy)
sex Sex (1) Male / (2) Female
Prehospital phase and admission
Symptom onset
onset_known Time of symptom onset known (0) no / (1) yes / (3) wake up
onset_time Time of symptom onset or last proof of good health
(dd.mm.yy) (hh:mm)
wakeup_time Time of awakening (dd.mm.yy) (hh:mm)
referral Referral (1) Emergency service (144) / (2) General Practitioner / (3) Self referral / (4) Other Stroke Unit or Stroke Center / (5) Other hospital / (6) In-hospital stroke
referring_unitcenter Patient referred from:
transport Type of transport (1) Ambulance / (2) Helicopter / (3) Other (taxi, self, relatives, friends...)
Clinical assessment
NIH_admission NIH Stroke Scale on admission (0-41) continuous (xx)
mca Vascular territory affected (select at least one, multiple are possible)
MCA (1) no / (2) right / (3) left / (4) bilateral
aca ACA (1) no / (2) right / (3) left / (4) bilateral
pca PCA (1) no / (2) right / (3) left / (4) bilateral
vertebrobasilar Vertebro-basilar (1) no / (2) right / (3) left / (4) bilateral
Brain imaging on admission
firstimage_type First brain imaging type (1) CT / (2) MRI / "If no internal brain imaging done:" (3) External CT / (4) External MRI
firstimage_result First brain imaging result (1) No acute lesion / (2) Ischemia / (3) Ischemia with hemorrhagic transformation / (4) Acute intracranial hemorrhage / (5) Other finding
Biometric data
bp_syst First systolic blood pressure in hospital (mmHg)
continuous (xxx)
bp_diast First diastolic blood pressure in hospital (mmHg)
continuous (xxx)
glucose Serum glucose (mMol/L) (first value after arrival) continuous (xx.x)
Variable Name
Section Variable description Variable description / format
Acute Treatment (multiple are possible)
treat_antiplatelet Antiplatelet drugs (0) no / (1) yes
treat_anticoagulant Anticoagulants (therapeutic dose) (0) no / (1) yes
treat_none No acute treatment (0) no / (1) yes
hospitalization Initial hospitalization
(1) Monitored stroke unit in-house / (2) Non-monitored stroke unit in-house / (3) Other intermediate or intensive care unit in-house / (4) General ward in-house / (5) Referral to other Stroke Unit or Stroke Center / (6) Referral to other hospital or care institution / (7) Outpatient management
other_unitcenter Patient referred to:
etiology_ischemia Etiology (modified TOAST criteria) (select only one option)
(1) Large artery atherosclerosis (>=50% stenosis) / (2) Cardiac embolism (excluding PFO or other rare cardiac causes) / (3) Small vessel disease / (4) Cervical artery dissection / (5) PFO (only cause and <3 vascular risk factors) / (6) Other determined etiology / (7) More than one possible etiology / (8) Unknown etiology despite complete evaluation / (9) Unknown etiology with incomplete evaluation / (10) Stroke or TIA mimic
Medical history
Past cerebrovascular events
stroke_pre Ischemic stroke or retinal infarction (0) no / (1) yes
tia_pre TIA or amaurosis fugax (0) no / (1) yes
ich_pre Intracranial hemorrhage (0) no / (1) yes
Cerebrovascular risk factors (known or newly diagnosed)
hypertension Hypertension (>140/90 mmHg repetitively) (0) no / (1) yes
diabetes Diabetes (without glucose intolerance) (0) no / (1) yes
hyperlipidemia Hyperlipidemia (treatment or LDL>2.6mmol/L) (0) no / (1) yes
smoking Actively smoking (or stopped <2 years ago) (0) no / (1) yes
atrialfib Atrial fibrillation/flutter (>1 documented episode)
(0) no / (1) yes
followimage_type Follow-up brain imaging
(1) None / (2) CT / (3) MRI / (4) CT and MRI
Hospital course / outcome
ich_sympt_hospital Symptomatic intracranial hemorrhage (0) no / (1) yes
ich_sympt_hospital_date Date of intracranial hemorrhage (dd.mm.yy)
Variable Name
Section Variable description Variable description / format
stroke_hospital Recurrent ischemic stroke in hospital (0) no / (1) yes
stroke_hospital_date Date of stroke (dd.mm.yy)
death_hospital Death in hospital (0) no / (1) yes 3-month follow-up form does not open if
cea_symptomatic Endarterectomy for symptomatic carotid stenosis
(0) no / (1) yes
Date of endarterectomy (dd.mm.yy)
cas_symptomatic Stenting for symptomatic carotid stenosis (0) no / (1) yes
Date of stenting (dd.mm.yy)
pfo_closure PFO closure (0) no / (1) yes
Date of PFO closure (dd.mm.yy)
discharge_destination Discharge destination (1) Home / (2) Rehabilitation hospital / (3) Other acute care hospital / (4) Nursing home, palliative care center, or other medical facility
discharge_date Date of hospital discharge (or death in hospital)
(dd.mm.yy) (hh:mm)
duration_hosptial Duration of hospital stay (dd:hh)
3-Month outcome
followup_date Date of follow-up (dd.mm.yy)
followup_mode Mode of follow-up (1) Clinical / (2) Telephone or other contact with patient / (3) Telephone or other contact with relative
mRS_90days mRS 3 months after stroke onset (0) 0 = No symptoms / (1) 1 = No significant disability despite symptoms / (2) 2 = Slight disability / (3) 3 = Moderate disability / (4) 4 = Moderately severe disability / (5) 5 = Severe disability / (6) 6 = Dead
Recurrent cerebrovascular events after discharge, ≤90 days of initial event (multiple events are possible)
stroke_followup Ischemic stroke including retinal stroke (0) no / (1) yes
stroke_followup_date Date of stroke (dd.mm.yy)
ich_followup Intracranial hemorrhage (0) no / (1) yes
ich_followup_date Date of intracranial hemorrhage
(dd.mm.yy)
death_followup Death (0) no / (1) yes
death_follwoup_date Date of death (dd.mm.yy)
3. Intracerebral hemorrhage
Variable Name
Section Variable description Variable description / format
Variable Name
Section Variable description Variable description / format
General information
id_site Site ID
birth_date Date of birth (dd.mm.yy)
id_hospital_case Hospital case ID (case number in hospital)
id_event Event ID
event_type Type of event (Criteria for new SSR entry Each hospital or emergency room admission for cerebrovascular event <7 days before admission, or occurring in hospital. If several events, select the most severe.
(1) Ischemic stroke / (2) Transient ischemic attack / (3) Intracerebral hemorrhage/ (4) Retinal infarct / (5) Amaurosis fugax / (6) Acute ischemic myelopathy / (7) Cerebral sinus vein thrombosis / (8) Non-traumatic subarachnoid hemorrhage
zip Zip code of legal residence (4 digit number)
non_swiss No Swiss residency (tick box)
arrival_date Date and time of arrival at hospital (dd.mm.yy) (hh:mm)
age Age (yyy.yyy)
sex Sex (1) Male / (2) Female
Prehospital phase and admission
Symptom onset
onset_known Time of symptom onset known (0) no / (1) yes / (3) wake up
onset_time Time of symptom onset or last proof of good health
(dd.mm.yy) (hh:mm)
wakeup_time Time of awakening (dd.mm.yy) (hh:mm)
referral Referral (1) Emergency service (144) / (2) General Practitioner / (3) Self referral / (4) Other Stroke Unit or Stroke Center / (5) Other hospital / (6) In-hospital stroke
referring_unitcenter Patient referred from:
transport Type of transport (1) Ambulance / (2) Helicopter / (3) Other (taxi, self, relatives, friends...)
Clinical assessment
NIH_admission NIH Stroke Scale on admission (0-41) continuous (xx)
GCS_admission GCS on admission (3-15) continuous (xx)
Brain imaging on admission
firstimage_type First brain imaging type (1) CT / (2) MRI / "If no internal brain imaging done:" (3) External CT / (4) External MRI
firstimage_result First brain imaging result (1) No acute lesion / (2) Ischemia / (3) Ischemia with hemorrhagic transformation / (4) Acute intracranial hemorrhage / (5) Other finding
Biometric data
bp_syst First systolic blood pressure in hospital (mmHg)
continuous (xxx)
Variable Name
Section Variable description Variable description / format
bp_diast First diastolic blood pressure in hospital (mmHg)
continuous (xxx)
height Height (cm) continuous (xxx)
weight Weight (Kg) continuous (xxx)
bmi BMI continuous (xx.x)
glucose Serum glucose (mMol/L) (first value after arrival) continuous (xx.x)
hospitalization Initial hospitalization
(1) Monitored stroke unit in-house / (2) Non-monitored stroke unit in-house / (3) Other intermediate or intensive care unit in-house / (4) General ward in-house / (5) Referral to other Stroke Unit or Stroke Center / (6) Referral to other hospital or care institution / (7) Outpatient management
other_unitcenter Patient referred to:
etiology_hemorrhage Etiology (1) Hypertension / (2) Anticoagulant / antithrombotic treatment / (3) Amyloid angiopathy / (4) Vascular lesion / (5) other determined etiology / (6) Unknown
Medical history
Past cerebrovascular events
stroke_pre Ischemic stroke or retinal infarction (0) no / (1) yes
tia_pre TIA or amaurosis fugax (0) no / (1) yes
ich_pre Intracranial hemorrhage (0) no / (1) yes
Cerebrovascular risk factors (known or newly diagnosed)
hypertension Hypertension (>140/90 mmHg repetitively) (0) no / (1) yes
diabetes Diabetes (without glucose intolerance) (0) no / (1) yes
hyperlipidemia Hyperlipidemia (treatment or LDL>2.6mmol/L) (0) no / (1) yes
smoking Actively smoking (or stopped <2 years ago) (0) no / (1) yes
atrialfib Atrial fibrillation/flutter (>1 documented episode)
(0) no / (1) yes
followimage_type Follow-up brain imaging
(1) None / (2) CT / (3) MRI / (4) CT and MRI
Hospital course / outcome
ich_sympt_hospital Symptomatic intracranial hemorrhage (0) no / (1) yes
ich_sympt_hospital_date Date of intracranial hemorrhage (dd.mm.yy)
stroke_hospital Recurrent ischemic stroke in hospital (0) no / (1) yes
stroke_hospital_date Date of stroke (dd.mm.yy)
death_hospital Death in hospital (0) no / (1) yes 3-month follow-up form does not open if
Date of PFO closure (dd.mm.yy)
decompression Decompressive craniectomy (0) no / (1) yes
Variable Name
Section Variable description Variable description / format
discharge_destination Discharge destination (1) Home / (2) Rehabilitation hospital / (3) Other acute care hospital / (4) Nursing home, palliative care center, or other medical facility
discharge_date Date of hospital discharge (or death in hospital)
(dd.mm.yy) (hh:mm)
duration_hosptial Duration of hospital stay (dd:hh)
3-Month outcome
followup_date Date of follow-up (dd.mm.yy)
followup_mode Mode of follow-up (1) Clinical / (2) Telephone or other contact with patient / (3) Telephone or other contact with relative
mRS_90days mRS 3 months after stroke onset (0) 0 = No symptoms / (1) 1 = No significant disability despite symptoms / (2) 2 = Slight disability / (3) 3 = Moderate disability / (4) 4 = Moderately severe disability / (5) 5 = Severe disability / (6) 6 = Dead
Recurrent cerebrovascular events after discharge, ≤90 days of initial event (multiple events are possible)
stroke_followup Ischemic stroke including retinal stroke (0) no / (1) yes
stroke_followup_date Date of stroke (dd.mm.yy)
ich_followup Intracranial hemorrhage (0) no / (1) yes
ich_followup_date Date of intracranial hemorrhage
(dd.mm.yy)
death_followup Death (0) no / (1) yes
death_follwoup_date Date of death (dd.mm.yy)
4. Retinal infarct
Variable Name
Section Variable description Variable description / format
General information
id_site Site ID
id_event Event ID
event_type Type of event (Criteria for new SSR entry Each hospital or emergency room admission for cerebrovascular event <7 days before admission, or occurring in hospital. If several events, select the most severe.
(1) Ischemic stroke / (2) Transient ischemic attack / (3) Intracerebral hemorrhage/ (4) Retinal infarct / (5) Amaurosis fugax / (6) Acute ischemic myelopathy / (7) Cerebral sinus vein thrombosis / (8) Non-traumatic subarachnoid hemorrhage
Clinical assessment
ocular Ocular (1) no / (2) right / (3) left / (4) bilateral
3-Month outcome
followup_date Date of follow-up (dd.mm.yy)
followup_mode Mode of follow-up (1) Clinical / (2) Telephone or other contact with patient / (3) Telephone or other contact with relative
mRS_90days mRS 3 months after stroke onset (0) 0 = No symptoms / (1) 1 = No significant disability despite symptoms / (2) 2 = Slight disability / (3) 3 = Moderate disability / (4) 4 = Moderately severe disability / (5) 5 = Severe disability / (6) 6 = Dead
Recurrent cerebrovascular events after discharge, ≤90 days of initial event (multiple events are possible)
stroke_followup Ischemic stroke including retinal stroke (0) no / (1) yes
stroke_followup_date Date of stroke (dd.mm.yy)
ich_followup Intracranial hemorrhage (0) no / (1) yes
ich_followup_date Date of intracranial hemorrhage
(dd.mm.yy)
death_followup Death (0) no / (1) yes
death_follwoup_date Date of death (dd.mm.yy)
5. Amaurosis fugax
Variable Name
Section Variable description Variable description / format
General information
id_site Site ID
id_event Event ID
event_type Type of event (Criteria for new SSR entry Each hospital or emergency room admission for cerebrovascular event <7 days before admission, or occurring in hospital. If several events, select the most severe.
(1) Ischemic stroke / (2) Transient ischemic attack / (3) Intracerebral hemorrhage/ (4) Retinal infarct / (5) Amaurosis fugax / (6) Acute ischemic myelopathy / (7) Cerebral sinus vein thrombosis / (8) Non-traumatic subarachnoid hemorrhage
Clinical assessment
ocular Ocular (1) no / (2) right / (3) left / (4) bilateral
3-Month outcome
followup_date Date of follow-up (dd.mm.yy)
Variable Name
Section Variable description Variable description / format
followup_mode Mode of follow-up (1) Clinical / (2) Telephone or other contact with patient / (3) Telephone or other contact with relative
mRS_90days mRS 3 months after stroke onset (0) 0 = No symptoms / (1) 1 = No significant disability despite symptoms / (2) 2 = Slight disability / (3) 3 = Moderate disability / (4) 4 = Moderately severe disability / (5) 5 = Severe disability / (6) 6 = Dead
Recurrent cerebrovascular events after discharge, ≤90 days of initial event (multiple events are possible)
stroke_followup Ischemic stroke including retinal stroke (0) no / (1) yes
stroke_followup_date Date of stroke (dd.mm.yy)
ich_followup Intracranial hemorrhage (0) no / (1) yes
ich_followup_date Date of intracranial hemorrhage
(dd.mm.yy)
death_followup Death (0) no / (1) yes
death_follwoup_date Date of death (dd.mm.yy)
6. Acute ischemic myelopathy
Variable Name
Section Variable description Variable description / format
General information
id_site Site ID
id_event Event ID
event_type Type of event (Criteria for new SSR entry Each hospital or emergency room admission for cerebrovascular event <7 days before admission, or occurring in hospital. If several events, select the most severe.
(1) Ischemic stroke / (2) Transient ischemic attack / (3) Intracerebral hemorrhage/ (4) Retinal infarct / (5) Amaurosis fugax / (6) Acute ischemic myelopathy / (7) Cerebral sinus vein thrombosis / (8) Non-traumatic subarachnoid hemorrhage
7. Cerebral sinus vein thrombosis
Variable Name
Section Variable description Variable description / format
General information
id_site Site ID
id_event Event ID
event_type Type of event (Criteria for new SSR entry Each hospital or emergency room admission for cerebrovascular event <7 days before admission, or occurring in hospital. If several events, select the most severe.
(1) Ischemic stroke / (2) Transient ischemic attack / (3) Intracerebral hemorrhage/ (4) Retinal infarct / (5) Amaurosis fugax / (6) Acute ischemic myelopathy / (7) Cerebral sinus vein thrombosis / (8) Non-traumatic subarachnoid hemorrhage
8. Non-traumatic subarachnoid hemorrhage
Variable Name
Section Variable description Variable description / format
General information
id_site Site ID
id_event Event ID
event_type Type of event (Criteria for new SSR entry Each hospital or emergency room admission for cerebrovascular event <7 days before admission, or occurring in hospital. If several events, select the most severe.
(1) Ischemic stroke / (2) Transient ischemic attack / (3) Intracerebral hemorrhage/ (4) Retinal infarct / (5) Amaurosis fugax / (6) Acute ischemic myelopathy / (7) Cerebral sinus vein thrombosis / (8) Non-traumatic subarachnoid hemorrhage