Changes in the RCN and the Changes in the RCN and the Children and Young People’s Children and Young People’s Cancer Nurses CommunityCancer Nurses Community

Rachel HollisRachel Hollis

Chair, Children and Young Chair, Children and Young People’s Specialist Care ForumPeople’s Specialist Care Forum

Focus on Forums Focus on Forums

Key component of the RCN function as Key component of the RCN function as nursing’s professional bodynursing’s professional body

Key component of the organization’s Key component of the organization’s commitment to professional development commitment to professional development

Key component of the RCN’s aspiration to Key component of the RCN’s aspiration to be a ‘membership led’ organizationbe a ‘membership led’ organization

A long history, and a lot of change…A long history, and a lot of change…

The role of the ForumsThe role of the Forums

provide networking opportunities provide networking opportunities help members enhance their practice knowledge help members enhance their practice knowledge

and skills and skills provide an expert resource provide an expert resource support RCN Council support RCN Council shape, drive and develop nursing practice shape, drive and develop nursing practice generate nurse leaders in their field generate nurse leaders in their field influence current and future health and social influence current and future health and social

policy in the UK and beyond policy in the UK and beyond

Forum ReconfigurationForum Reconfiguration

Rationalisation of the RCN ForumsRationalisation of the RCN Forums Over time, proliferation of Forums, Special Over time, proliferation of Forums, Special

Interest Groups, & other networking, expert, Interest Groups, & other networking, expert, practice focussed and lobbying groupspractice focussed and lobbying groups

Recent lengthy process of ‘transforming’ the Recent lengthy process of ‘transforming’ the Forums to ensure equity and effectivenessForums to ensure equity and effectiveness

Proactive approach of the Children’s and Proactive approach of the Children’s and Young People’s Field of PracticeYoung People’s Field of Practice

Paediatric Forums in the RCNPaediatric Forums in the RCN

Collaborative and active Paediatric Groups have Collaborative and active Paediatric Groups have a long history within RCNa long history within RCN

Over 30 Forums, Special Interest Groups and Over 30 Forums, Special Interest Groups and other Paediatric ‘entities’ developed over time other Paediatric ‘entities’ developed over time Varying in size, activity, focusVarying in size, activity, focus

Paediatric Oncology Nurses Forum (PONF) one Paediatric Oncology Nurses Forum (PONF) one of the longest established of the Paediatric of the longest established of the Paediatric Forums (set up before Paediatric Society – 1Forums (set up before Paediatric Society – 1stst ‘umbrella’ group)‘umbrella’ group) We shared a 25We shared a 25thth Anniversary last year! Anniversary last year!

Children and Young People’s Field Children and Young People’s Field of Practiceof Practice

Collaborative working between the various Collaborative working between the various groups well established and recognizedgroups well established and recognized

CYP ‘Advisory Board’ in different guises CYP ‘Advisory Board’ in different guises has been meeting, with other stake has been meeting, with other stake holders, over a number of years, and with holders, over a number of years, and with support from committed Nurse Advisorssupport from committed Nurse Advisors

Recognised a need to engage with Recognised a need to engage with process of ‘transformation’ of Forumsprocess of ‘transformation’ of Forums

CYP Field of PracticeCYP Field of Practice The Field of Practice brings together all members The Field of Practice brings together all members

working with babies, children and young people and working with babies, children and young people and encompasses respective specialty forums and encompasses respective specialty forums and communities.communities.

It’s purpose is to:It’s purpose is to: promote and develop high quality evidence based nursing care promote and develop high quality evidence based nursing care

of children and young people and their families of children and young people and their families be a focus for RCN members committed to nursing children and be a focus for RCN members committed to nursing children and

young people, providing them with networks and opportunities young people, providing them with networks and opportunities for support, advice and professional development for support, advice and professional development

be a voice for children and young people’s nursing within the be a voice for children and young people’s nursing within the RCN RCN

influence and lobby external organisations to ensure the voice of influence and lobby external organisations to ensure the voice of children and young people and nurses working with them is children and young people and nurses working with them is heardheard

CYP: Specialist Care ForumCYP: Specialist Care Forum

This forum supports all members who provide This forum supports all members who provide specialist nursing to children and young people specialist nursing to children and young people across all care settings.across all care settings.

The communities linked to this forum are:The communities linked to this forum are: CYP Cancer NursesCYP Cancer Nurses      Children's Urology and Continence NursesChildren's Urology and Continence Nurses CYP Endocrine NursesCYP Endocrine Nurses CYP HIV Nurses CYP HIV Nurses CYP Rheumatology Nurses CYP Rheumatology Nurses CYP Diabetes NursesCYP Diabetes Nurses

Purpose of CYPCNPurpose of CYPCNContinues and builds on the aims of PONF to:Continues and builds on the aims of PONF to: Be a professional voice for all nurses working with children Be a professional voice for all nurses working with children

and young people who have cancer and their families. and young people who have cancer and their families. Facilitate collaboration and coordination in a common work Facilitate collaboration and coordination in a common work

plan that brings together the needs and expertise of all plan that brings together the needs and expertise of all elements within the CYP Cancer Nursing Community. elements within the CYP Cancer Nursing Community.

Provide networking opportunities for nurses working with Provide networking opportunities for nurses working with CYP with cancer. CYP with cancer.

Help members to enhance and develop their practice Help members to enhance and develop their practice knowledge and skills. knowledge and skills.

Work with medical colleagues and other members of the Work with medical colleagues and other members of the multidisciplinary team within the specialty to develop multidisciplinary team within the specialty to develop shared objectives and strategies for influencing health shared objectives and strategies for influencing health provision and health service policy in cancer care Work provision and health service policy in cancer care Work with external agencies and voluntary sector partners to with external agencies and voluntary sector partners to ensure that the needs of CYP with cancer and their ensure that the needs of CYP with cancer and their families are addressed. families are addressed.

CYPCN within the Specialist Care CYPCN within the Specialist Care ForumForum

Advise, influence and inform the CYP Advise, influence and inform the CYP Specialist Care Forum of the specific Specialist Care Forum of the specific issues in the care of children and issues in the care of children and young people with cancer. young people with cancer.

Work with the other communities of Work with the other communities of the CYP Specialist Care Forum in the CYP Specialist Care Forum in collaborative projects.collaborative projects.

Work with the other communities in Work with the other communities in planning our Joint Conference!planning our Joint Conference!

CYP Specialist Care Forum ConferenceCYP Specialist Care Forum Conference

15 March 2011, MET Hotel, Leeds15 March 2011, MET Hotel, LeedsSo what’s so ‘Special’ about Specialist Care for So what’s so ‘Special’ about Specialist Care for

Children and Young People?Children and Young People? Ministerial speaker invitedMinisterial speaker invited Professor Faith Gibson Professor Faith Gibson Listening to children and Listening to children and

young peopleyoung people Chris Caldwell – Chris Caldwell – Modernising Nursing CareersModernising Nursing Careers Janet McDonagh - Janet McDonagh - Transitional Care PathwaysTransitional Care Pathways Rebecca Thompson and Deborah Christie – Rebecca Thompson and Deborah Christie –

Promoting Emotional Well BeingPromoting Emotional Well Being Concurrent sessions will include:Concurrent sessions will include:

Cancer specific ‘stream’Cancer specific ‘stream’ NutritionNutrition And So Much More!And So Much More!

CYPCN: Ways of WorkingCYPCN: Ways of Working

The Link Member NetworkThe Link Member Network 2 identified Link Members in each CCLG 2 identified Link Members in each CCLG

treatment centretreatment centre Represents members from each centre, and Represents members from each centre, and

from diversity of clinical settingsfrom diversity of clinical settings Still aim to meet nationally twice a year Still aim to meet nationally twice a year

• Subject to project bid processSubject to project bid process Aims to disseminate information and share Aims to disseminate information and share

expertise and experience between centresexpertise and experience between centres 2-way communication with Community Co-2-way communication with Community Co-

ordinator and ‘Key Community Contacts’ordinator and ‘Key Community Contacts’

Who are the key contacts?Who are the key contacts? Community Co-ordinatorCommunity Co-ordinator Newsletter/website leadsNewsletter/website leads Coordinators of CYCPN groups: Coordinators of CYCPN groups:

CYP Oncology Outreach Nurses (POONS)CYP Oncology Outreach Nurses (POONS) CYP Bone Marrow Transplant GroupCYP Bone Marrow Transplant Group CYP Cancer Nurses Education Group CYP Cancer Nurses Education Group

(PONE)(PONE) Childhood Cancer Research Nurses GroupChildhood Cancer Research Nurses Group

Collaboration with the CCLGCollaboration with the CCLG

PONF from its earliest days worked PONF from its earliest days worked closely with the UKCCSG, and then the closely with the UKCCSG, and then the CCLGCCLG

Changes within both the RCN and the Changes within both the RCN and the CCLG are: CCLG are: a threat to our respective identities as a threat to our respective identities as

nationally recognised and significant nationally recognised and significant organisationsorganisations

an opportunity to develop our partnership to an opportunity to develop our partnership to strengthen both organisations in the future strengthen both organisations in the future

CYPCN: New ways of workingCYPCN: New ways of working Reviewing our partnership with the CCLGReviewing our partnership with the CCLG Working as part of a ForumWorking as part of a Forum

Collaboration on joint projectsCollaboration on joint projects Continue our own activitiesContinue our own activities

• Process of project bids Process of project bids • Focus on work programme rather than a ‘steering group’ Focus on work programme rather than a ‘steering group’

approachapproach

Working as an ‘on-line’ communityWorking as an ‘on-line’ community development of the websitedevelopment of the website

Working across treatment and care settings – Working across treatment and care settings – PTC, POSCU, CommunityPTC, POSCU, Community The Workshop today The Workshop today