長期病患 Chronic Illness

電話 Tel :傳真 Fax :電郵 Email :網址 Website :地址 Address :

成立年份 Year of Establishment :會員人數 Membership :

20005060腎友聯

Alliance for Renal Patients Mutual Help Association

8100 08212336 [email protected]九龍橫頭磡邨宏禮樓地下 (社區復康網絡)G/F, Wang Lai House, Wang Tau Hom Estate, Kowloon(Community Rehabilitation Network)


成立年份 Year of Establishment : 會員人數 Membership : B27 協進會

B27 Association

3188 9847，8233 71712338 [email protected]九龍橫頭磡邨宏禮樓地下 (社區復康網絡)G/F, Wang Lai House, Wang Tau Hom Estate, Kowloon(Community Rehabilitation Network)

1995 220

背景

腎友聯是由全港十個腎病病人互助會於2000年

所組成，包括紅豆會、康寧腎友會、屯門醫院

腎誼會、腎之友、腎康會、腎友互助協會、東

華腎友互助會、廣華腎科病人互助會、伊利沙

伯醫院腎友互助會、東區尤德夫人那打素醫院

腎友自助小組。

宗旨及目標

宗旨為加強各腎友會之間的溝通及聯繫，團結

力量向政府反映腎病患者的需要，發揮互助精

神，爭取病人權益。目標為：

- 推廣器官捐贈

- 推廣病人組織之需要及腎病常識

- 關注腎病病人福利及政策

- 關注腎病病人醫療服務

服務對象

腎病病患者

服務

熱線電話、期刊

BackgroundTen renal patients self-help groups set up Alliance for Renal Patients Mutual Help Association in 2000, including Kidney Bean, Hong Ling Renal Club, Kidney Patients’ Association – Tuen Mun Hospital, Renal Companion Association, Kidney Rehabilitation Society, Renal Mutual Help Association, Mutual Support Society for Tung Wah Renal Patients, Kwong Wah Hospital Renal Patients Support Group, QEH Renal Support Group, PYNEH Renal Self Help Group.

Aims and ObjectivesAiming at enhancing the communication and connection of renal patients’ groups, and reflecting the needs of renal patients to the government. The objectives are :

- to promote organ donation- to publicize the need of self-help patients group and knowledge of

renal diseases- to concern the welfare and policies for renal patients- to concern the medical services for renal patients

Service TargetRenal patients

ServiceHotline and periodical magazine

背景

B27協進會是由一群患有強直性脊椎炎的病友

合力組織起來，在1995年成立的自助互助團體。

宗旨及目標

以同路人的身份去關懷及支援患有強直性脊椎

炎的病友，並促進公眾人士認識及關注此病症。

目標為：

- 舉辦活動，團結病友彼此關懷，互相支持

- 加強資訊交流，傳達治療病症之正確訊息

- 促進及鼓勵對強直性脊椎炎的科學研究

服務對象

強直性脊椎炎病患者

服務

分享聚會、醫療講座、訓練小組、探訪病友、

康樂活動、定期會訊

BackgroundB27 Association is a self help group established in 1995 by a group of Ankylosing Spondylitis patients.

Aims and ObjectivesProviding peer concern and support to patients with Ankylosing Spondylitis and promoting public awareness of the disease. The objectives are:

- to arrange the exchanges of experiences among the patients- to keep up-to-date news on treatments and issues related to

Ankylosing Spondylitis- to promote and encourage scientific research of the ailment

Service TargetPatients suffering from Ankylosing Spondylitis

ServiceSharing groups, health talks, rehabilitation groups, concern visits, recreational activities, regular newsletters

3

長期病患 Chronic Illness 長期病患 Chronic Illness

4

成立年份 Year of Establishment : 會員人數 Membership :

成立年份 Year of Establishment : 會員人數 Membership : 關心您的心

Care For Your Heart

2614 04222439 [email protected]香港中環皇后大道中99號中環中心地下2C室Unit 2C, G/F, The Center, 99 Queen’s Road Central, Hong Kong

1995 1715

2958 63782332 [email protected]九龍加士居道30號伊利沙伯醫院 (病人資源中心)Queen Elizabeth Hospital, 30 Gascoigne Road, Kowloon(Patient Resource Centre)

1997 255 糖盼樂互協會

Diabetic Mutual Support Group



5 6

背景

糖盼樂互協會前身是伊利沙伯醫院病人資源中

心轄下的一個病人小組「糖尿互協小組」，由

一群熱心的病患者和義務醫護人員於1992年組成。糖盼樂互協會在1997年註冊為非牟利慈

善團體。

宗旨及目標

- 透過小組活動，讓病患者能互相認識，支持

和鼓勵

- 增強醫護人員、病患者與家屬間的溝通

- 增加病患者及家屬對糖尿病的認識

- 爭取病患者的權益

服務對象

糖尿病患者及其照顧者

服務

關懷聯絡服務、健康講座及研討會、消閒週末

小聚、戶外及康樂活動、週年大會

BackgroundDiabetic Mutual Support Group was formerly a patients group organized by a group of diabetic patients, medical staff and social workers under Queen Elizabeth Hospital Patient Resource Centre. It was established in 1997 and registered under Hong Kong Societies Ordinance.

Aims and Objectives- to enhance the sense of self-help, mutual help and

communication among members - to facilitate the mutual communication between medical staff and

patients- to enhance patients and their caregivers the knowledge of

diabetes and diabetic caring skills- to advocate the patients’ rights

Service TargetDiabetic patients and their care-givers

ServicePatient caring service, health talk, gathering and sharing activities, outdoor and recreational activities, annual general meeting

背景

關心您的心是本港首個以社區為本的心臟病患

者的互助組織，於1995年由一群心臟病患者成

立並註冊成為慈善團體。關心您的心於1998年成立香港第一所心臟病患者互助及資源中心，

提供心臟健康資訊給巿民取閱，並為有需要的

病患者提供情緒支援。

宗旨及目標

發揮會友及家屬互助互勉精神，解開因病帶來

的困惑和恐懼。攜手共進復康之路，邁向豐盛

人生。

服務對象

心臟病患者及其家屬

服務

心臟病知識講座、心臟復康課程、健體活動、

互助小組及分享聚會、關懷服務、健康推廣活

動、心臟健康資訊製作、爭取權益及倡導工作

BackgroundCare For Your Heart is the first community-based cardiac patients mutual support association, established in 1995 as a registered charitable institution. In 1998, the first Cardiac Patients Mutual Support & Resource Centre was set up. The centre provides cardiac health education materials. It also provides psychological support to patients who are in distress because of the illness.

Aims and ObjectivesTo promote mutual support spirit among cardiac patients and their families in tackling psychosocial problems related to their illness.

Service TargetCardiac patients and their families

ServiceCardiac health talks, cardiac rehabilitation courses, exercise groups, mutual support groups and sharing meetings, patients care services, cardiac health public awareness program, cardiac health educational materials, advocacy






2603 68692323 [email protected]九龍黃大仙下邨龍昌樓地下C翼2-8號 (癌協綜合服務中心)Unit 2-8, Wing C, G/F Lung Cheong House, Lower Wong Tai Sin Estate, Kowloon(CancerLink Support and Resource Centre)

1997 357 心血會

Hong Kong Adult Blood Cancer Group香港強脊會Hong Kong Ankylosing Spondylitis Association

8134 20182794 [email protected]將軍澳郵政信箱65287號P.O. Box 65287, Tseung Kwan O Post Office, Kowloon

1994 254

7 8

背景

香港強脊會的前身是附屬於香港傷健協會

的「強脊社」，是一個由強直性脊椎炎病患者

自發組成的非牟利組織。香港強脊會於1994年根據社團條例註冊成立。

宗旨及目標

以同路人的角色，協助病患者積極地面對強直

性脊椎炎。目標為：

- 提高會員的自助自立精神

- 聯絡及增進會員間的關懷和幫助

- 向公眾人士介紹及展示會員本身的工作能力

- 向有關機構爭取合理的權益及援助

- 向會員及公眾人士介紹強直性脊椎炎和醫藥

資訊

服務對象

強直性脊椎炎病患者及其家屬

服務

分享會、探訪、病理講座、水中運動班、興趣

班、聯誼活動、出版《病患者手冊》、推行社

區教育介紹強直性脊椎炎

背景

心血會成立於1997年，初期是協助在威爾斯親

王醫院的血癌及淋巴癌病患者，現已將這項服

務推擴展至全港有需要的病患者。

宗旨及目標

- 協助病友建立朋輩支援網絡，使他們能作緊

密聯繫和交流，發揮互相扶持精神

- 增強病友與家人的溝通及適應

- 協助病友深入了解血癌和淋巴癌的療程

- 倡導政府及社會人士對血癌和淋巴癌病患者

的認識及關懷

服務對象

血癌及淋巴癌病患者及其家屬

服務

定期聯繫病友、家屬支援服務、分享會、康樂

活動、醫學及專題講座、出版季刊、輔導及轉

介服務、公眾健康教育、關注醫療照顧，爭取

病人權益

BackgroundHong Kong Adult Blood Cancer Group, aiming at supporting patients and their families in overcoming leukemia or lymphoma through hard times of treatment, was set up by patients, family members, medical and nursing staff of the Prince of Wales Hospital in 1997. The Group is now serving all blood cancer patients in the territory.

Aims and Objectives- to form a territory-wide peer support network and provide

opportunities for patients to help themselves by helping one another

- to facilitate communication between patients and their families to cope with the stress of illness

- to increase patient’s awareness of the courses of treatment and their side effects

- to draw the public’s attention to the care and needs of leukemia and lymphoma patients

Service TargetLeukemia and Lymphoma patients and their families

ServiceRegular meetings to reach out to patients, supporting services to the patient’s family, sharing groups, recreational activities, medical talks, newsletters, counseling, public education, concern the care and advocate the rights of the patients

BackgroundThe Association, formerly named as Ankylosing Spondylitis Group under the Hong Kong PHAB Association, is a non-profit making organization founded by a group of patients suffering from Ankylosing Spondylitis. The Association was set up in 1994 and registered under the Societies Ordinance.

Aims and ObjectivesThe Association aims to support patients with ankylosing spondylities and share experiences in coping with the disease positively. The objectives are:

- to strengthen the concept of self-help, self independence and self confidence among members

- to build an efficient network for members and their family members in order to enhance mutual help and communication

- to promote the images of self independence and working ability of members to the public

- to solicit support and funds from related welfare / voluntary associations for the services provided and the growth of the Association

- to provide information about ankylosing spondylitis and related health care services to members and the general public

Service TargetPatients suffering from Ankylosing Spondylitis and their families

ServiceSharing sessions for patients, visits, medical talks, water exercise classes, interest classes, social gatherings, publishing handbook for the patients of ankylosing spondylitis, education and promotion program




成立年份 Year of Establishment : 會員家庭 Family Membership :


9 10

2794 19152338 [email protected]九龍橫頭磡邨宏偉樓地下11-12號Unit 11-12, G/F, Wang Wai House, Wang Tau Hom Estate, Kowloon

1991 499 香港兔唇裂顎協會

Hong Kong Association for Cleft Lip and Palate

2895 65022711 [email protected]九龍觀塘復康徑7號一樓1/F, No.7 Rehab Path, Kwun Tong, Kowloon

1989 1122 香港哮喘會

The Hong Kong Asthma Society背景

香港哮喘會成立於1989年，是以病患者及病患

者家屬為主幹的非牟利團體。

宗旨及目標

協助哮喘病患者過著正常人的生活。目標為：

- 提供哮喘病的常識，使病患者及其家屬對哮

喘病有更深的認識

- 給與哮喘病患者一個互相溝通的機會

- 舉辦有關哮喘病的學術講座和研討會

- 組織適宜於患有哮喘病兒童的活動

服務對象

哮喘病患者及其家屬

服務

分享會、講座、康體及大型活動

背景

香港兔唇裂顎協會是本港首個專為唇顎裂患兒

及其家長提供服務的非牟利註冊團體，由一群

患兒家長自發組織在1991年成立。協會設於橫

頭磡邨的服務中心於2001年啟用。

宗旨及目標

- 爭取提高社會對兔唇裂顎患兒提供之護理服務

- 增進家長對照料兔唇裂顎子女的認識，從而

使患兒能健康快樂地成長

- 推動兔唇裂顎患者間及家長們彼此支持和互助

- 增進社會人士對兔唇裂顎患者的了解和接納

服務對象

兔唇裂顎患兒及其家長

服務醫院探訪新生患兒家長及手術後患兒、專題醫

療講座、提供患兒專用的餵食用具及護理用

品、家長互助小組及分區聚會、親子教育活

動、小義工服務計劃、社區推廣及教育活動、

康樂及聯誼活動、輔導熱線電話、提供護理手

冊及照顧患兒的資料、資源閣

BackgroundHong Kong Association for Cleft Lip and Palate was formed in 1991 by the parents of children with cleft lip and palate and is the first registered non-profit making and charitable organization to provide services for cleft families in Hong Kong.

Aims and Objectives- to strive for improvements in medical services for people with cleft

lip and palate- to enhance parents’ knowledge in care-taking of their children with

cleft lip and palate so that they can have healthy physical and psychological development

- to promote the mutual support among the parents as well as people with cleft lip and palate

- to enhance the understanding and acceptance of the general public towards persons with cleft lip and palate

Service TargetChildren with cleft lip and palate and their parents

ServiceHospital visits, medical talks, sales of special types of feeding bottles and caring items, mutual help groups, parents and children groups, volunteers training, community education, recreational activities, hotline services, care-taking booklets, resource library

BackgroundFounded in 1989, The Hong Kong Asthma Society is a registered non-profit making, charitable, patient-based organization in Hong Kong.

Aims and ObjectivesThe overall goal is to help asthmatics to lead a normal life. The objectives are :

- to educate asthmatics and their families to help them understand asthma better

- to provide an opportunity for asthmatics to communicate amongst themselves

- to organize seminars for adult asthmatics and parents of asthmatic children

- to organize activities suitable for asthmatic children

Service TargetAsthmatics and their families

ServiceSharing, seminars, health & exercise activities






11


1988 310 樂晞會

Hong Kong Lupus Association

1998 200


香港肌健協會Hong Kong Neuro-Muscular Disease Association

12

背景

香港肌健協會由一群患有神經／肌肉疾病患者

和家屬，於1997年成立的一個互助小組，並於

1998年註冊為法定社團。

宗旨及目標

透過團結互助，稍減疾病帶來的苦難，改善生

活質素，並團結患者及家屬的力量，創造對患

者更有利的社會環境。

服務對象

神經／肌肉疾病（肌肉萎縮症）患者及其家屬

服務

會友互助小組、探訪及輔導小組、定期聚會、

專題講座、社交康樂活動、會員通訊、社區資

源手冊、病類教育單張及網頁、組織長期病患

者福利及服務關注小組

背景

樂晞會是由一群患有紅斑狼瘡的病患者合力組

織起來的自助互助團體。

宗旨及目標

以過來人身份去關懷及支援同路人，使更多人

認識此病，喚醒公眾人士關注，及如發現患上

此病時應如何處理及面對。目標為：

- 發揮病友間「自助、助人」之共濟精神，提

高病友間的士氣，共同為疾病奮鬥

- 協助遭受疾病打擊的個人、家庭坦然地面對

疾病，促進病患者與家屬間之溝通和適應

服務對象

系統性紅斑狼瘡症病患者

服務

出版《樂晞園地》刊物及病友通訊錄、聚會

( 醫學講座、交流會及會員大會 ) 、聯誼聚會、

熱線服務 ( 提供病友及外間查詢本會活動，並

提供朋輩情緒支援服務 )

BackgroundHong Kong Lupus Association is a coadjutant and self-helping organization founded by a group of Systemic Lupus Erythematosus (SLE) sufferers.

Aims and ObjectivesThe group aims at sharing experience, caring and providing assistance to SLE sufferers and helping them to face and treat SLE as well as raising the public’s awareness and understanding about SLE. The objectives are:

- to enhance the self- help spirit and morale among sufferers so as to fight against the disease

- to help sufferers and their family members to face the disease and facilitate their communications and adaptation

Service TargetSystemic Lupus Erythematosus patients

ServicePublishing of “Lupus Land” magazine and newsletter, gatherings (talk, seminar and members’ meeting), social gatherings, hotline service (in supporting members or outsiders’ enquires about the activities of the Association, and providing peer group emotional support service)

BackgroundA group of sufferers of neuro-muscular disease and their family members formed a mutual-help group in 1997. The Association was subsequently founded and registered as a legal entity in 1998.

Aims and ObjectivesThe Association aims to improve the quality of life and assemble efforts in creating a favorable social environment for people with neuro-muscular disease and their families.

Service TargetPatients with Neuro-Muscular Disease and their families

ServiceMutual-help groups, concern visits and volunteer service, gatherings, medical seminars, recreational activities, periodical bulletin, educational package and materials, concern group on social policy and services






13 14

1999 511


香港柏金遜症會Hong Kong Parkinson’s Disease Association

6229 12418101 [email protected]九龍亞皆老街147B 九龍醫院護士宿舍地下G/F, Nurse Dormitory, Kowloon Hospital, 147B Argyle Street, Kowloon

2003 307 香港沙士互助會

Hong Kong SARS Mutual Help Association背景

香港沙士互助會於2003年12月正式成立，為了

協助各沙士康復者建立互助自助的精神。

宗旨及目標

透過教育性、治療性及康樂性的活動，鼓勵沙

士康復者重投正常生活，以貫徹香港沙士互助

會的互助自助精神。

服務對象

沙士康復者

服務

分享會、講座(骨骼健康、病友復康學習工作

坊、社署/醫管局全接觸、中醫藥篇 ) 、戶外活

動 ( 郊遊、戶外康樂日營 )

背景

香港柏金遜症會是由一群柏金遜症患者、家屬、

照顧者及社區人士所組成的自助組織。經費主

要依賴會員會費及外界捐助，並在1999年正式

註冊成為非牟利慈善團體。

宗旨及目標

- 發揮柏金遜症患者及家屬互助精神

- 推廣社會大眾對柏金遜症的正確認識及關懷

- 關注柏金遜症患者的福利及合理權益

服務對象

柏金遜症患者、家屬及照顧者

服務

病友分享聚會、關懷探訪、自助復康運動、醫

學講座、社交康樂活動、社區教育、會員通訊

BackgroundFounded in 1999, The Hong Kong Parkinson’s Disease Association is a registered non-profit self-help organization which mainly relies on donations and membership fee. The Association has contributed to mutual help among the parkinsonians and their carers locally.

Aims and Objectives- to evoke mutual help among the parkinsonians and their families- to promote public concern towards the parkinsonians and to

educate the public to understand the parkinson’s disease- to concern the welfare and right of the parkinsonians

Service TargetParkinsonians and their families

ServicePatient sharing assemblies or groups, patient visitations, self-help rehabilitation exercises, health seminar, recreational activities, community education programmes, newsletters, etc.

BackgroundThe Association was formed in December 2003 by the survivors of SARS with the aim of helping each other in starting anew in the future.

Aims and ObjectivesThe Association aims to provide help to its members through organizing informational, educational and rehabilitating activities.

Service TargetRecovered patients of SARS

ServiceExperience sharing workshop, seminars (AVN seminars, physiotherapy and nutrition talk, talk on SARS funding application, Chinese post-SARS medication seminar), outdoor activity






15 16

香港造口人協會Hong Kong Stoma Association

2834 60962838 [email protected]九龍黃大仙下邨龍福樓14-15號地下G/F, No. 14-15, Lung Fook House, Lower Wong Tai Sin Estate, Kowloon

1979 2151

2320 07952323 [email protected]九龍黃大仙下邨龍昌樓地下C翼2-8號 (癌協綜合服務中心) Unit 2-8, Wing C, G/F, Lung Cheong House, Lower Wong Tai Sin Estate, Kowloon(CancerLink Support and Resource Centre)

1995 296 健樂社

Kin Lok Club背景

健樂社是由一群鼻咽癌康復者，在瑪麗醫院癌

症輔導及支援服務的社工及醫護人員協助下組

成，於1995年正式註冊為慈善團體。

宗旨及目標

- 發揮鼻咽癌病患者的互助精神，彼此支持

- 促進鼻咽癌病患者與其家屬的溝通、關懷及

互相適應

- 倡導公眾人士對鼻咽癌病患者的認識及關懷

- 爭取鼻咽癌病患者的福利及合理權益

服務對象

鼻咽癌病患者及其家屬

服務

家訪／醫院探訪、健康講座、分享會及地區小

組聚會、參與爭取長期病患者福利的活動、與

其他團體合作舉辦活動、康樂活動、出版通訊

背景

香港造口人協會是香港首個病人自助組織，為

一註冊及非牟利慈善團體，於1979年由一群接

受了造口手術的人士，在社工及醫護人員的協

助下成立。香港造口人協會由「香港癌症基金

會」及「香港公益金」資助，亦為「國際造口

協會」及「亞洲造口協會」會員。

宗旨及目標

- 鼓勵造口人士建立支持網絡，發揮自助互助

精神

- 提供支援性服務、分享經驗及交換資訊，促

進造口人士身心康復

- 倡導造口人士的權益，及增加社會大眾對他

們的認識與接納

- 教育公眾認識及預防腸癌和其他有關疾病

服務對象

接受造口手術的人士

服務

醫院探訪、每月會員聚會／醫學講座、輔導及

轉介服務、小組活動、義工當值服務、康樂及

社交活動、印製會通訊及其他刊物、公眾教育、

爭取會員福利、與本地及海外醫護人員和造口

人士服務組織進行交流

BackgroundThe Hong Kong Stoma Association is a registered non-profit making organization, and is the first patients’ self-help organization in Hong Kong. It was set up by and for ostomates in 1979 with the help of social workers and medical professionals. The Association is currently funded by the Hong Kong Cancer Fund and the Community Chest. It is a member of the International Ostomy Association and the Asian Ostomy Association.

Aims and Objectives- to advocate self-help spirit and supportive network among

ostomates- to assist members to fully rehabilitate and re-integrate into the

community through various social and rehabilitative services- to advocate patients’ rights and arouse public concern to the

needs and problems faced by ostomates- to increase the public awareness of the symptoms and prevention

of colon rectal and bladder cancers through public education

Service TargetOstomates (stoma patients)

ServiceHospital visits, stoma care services / health talks, case counseling & referrals, district support group activities, volunteer enquiry, social & recreational activities, interest development groups, publications, public education, liaison with suppliers of stoma appliances, work with local nursing professionals and overseas ostomy organizations

BackgroundKin Lok Club, formed by a group of nasopharyngeal carcinoma (NPC) patients with the help from social workers and medical professions of the Queen Mary Hospital Cancer Centre, was set up in 1995 as a registered charitable organization.

Aims and Objectives- to develop the spirit of mutual help and support- to facilitate the communication, care and concern between

patients and their families- to draw the public attention to the care and needs of NPC patients- to fight for the benefit and rights of NPC patients

Service TargetNasopharyngeal carcinoma patients and their families

ServiceVisits, health talks, orientation programs and regional groups meeting, participation in related activities to advocate the rights and benefit of chronically ill patients, networking programs with other organizations, recreational activities, newsletters






17 18

2958 63782332 [email protected]九龍加士居道30號伊利沙伯醫院 (病人資源中心)Queen Elizabeth Hospital, 30 Gascoigne Road, Kowloon(Patient Resource Centre)

1993 58 愛心天使

Loving Angels腦同盟Neuro United

2560 21022967 [email protected]香港鰂魚涌英皇道1120號康山花園第六座地下 (社區復康網絡)G/F, Block 6, Kornhill Garden, 1120 King’s Road, Quarry Bay, Hong Kong(Community Rehabilitation Network)

1992 718

背景

腦同盟是由前瑪麗醫院腦外科馮正輝醫生聯同

麥理浩復康院一群醫護人員協助腦科病人自發

組成，於1992年經社團條例註冊成立。

宗旨及目標

- 協助腦損病友積極面對殘疾

- 發揮腦損病友的互助精神

服務對象

腦神經受損患者及其家屬

服務

探訪、分享小組、康樂活動、熱線、刊物

背景

愛心天使是由一群患有地中海貧血症的病患者

組成的非牟利組織。組織前身是一個名為「真

我的風采」義工小組，在伊利沙伯醫院的醫護

人員和社工的推動下，於1993年正式註冊成

立，定名為愛心天使。自1997年起愛心天使的

服務更推廣至其他血科病患者，藉此讓更多長

期病患者受惠。

宗旨及目標

協助病患者融入社會，擴闊他們的社交圈子，

加強互助互愛的精神。目標為：

- 促進會員溝通，互相扶持及發揮互助互愛之

精神

- 為病患者及其家屬舉辦康樂、教育及發展性

的活動

- 提供購買醫療藥物及用具的優惠服務

- 加強病患者及其家屬對疾病之認識

服務對象

地中海貧血症或血科病患者及其照顧者

服務

病友分享、康樂及聯誼活動、健康講座及研討

會、週年大會、提供會員優惠購買醫療用具

BackgroundLoving Angels was organized by a group of Cooley’s Anaemia patients. The group was developed from a volunteer training group. With the assistance of the medical staff and social workers of Queen Elizabeth Hospital, Loving Angels was established in 1993 and registered under Societies Ordinance. Since 1997, the service is extended to other blood disease patients.

Aims and ObjectivesThe group aims at assisting members to reintegrate to the community, extend their social network and enhance their sense of mutual help. The objectives are:

- to enhance the sense of self-help, mutual help and communication among members

- to organize social, recreational and developmental programs for members and care-givers

- to provide privilege for members on purchasing medication and medical accessories / equipment

- to facilitate the mutual communication between medical staff and patients

Service TargetPatients with Cooleys’ Anaemia or blood disease and their care-givers

ServicePeer sharing, social and recreational programmes, health talk, annual general meeting, privilege for members on purchasing medication and medical accessories/equipment

BackgroundNeuro United was organized by brain-injured patients with the support from Dr. Fung Ching Fai, an ex-neurological doctor of Queen Mary Hospital together with a group of medical professionals. The Group was founded and registered under Societies Ordinance in 1992.

Aims and Objectives- to help the brain-injured patients to face the disease positively- to foster the mutual-help spirit among the patients

Service TargetBrain-injured patients and their families

ServiceVisits, sharing groups, social and recreational activities, hotline, publications




19 20


2382 69632563 [email protected]九龍東頭邨逸東樓8-11號地下No. 8-11, G/F, Yat Tung House, Tung Tau Estate, Kowloon

1991 700 再生會

Regeneration Society


1992 1001

2386 16662387 [email protected]九龍深水埗南昌邨昌安樓地下1-4號Unit 1-4, G/F, Cheong On House, Nam Cheong Estate, Kowloon

肺積塵互助會Pneumoconiosis Mutual Aid Association

背景

再生會成立於1991年，是一個非牟利、無宗教、

無政治背景的康復團體，致力推廣健康知識及

為長期病患者提供多元化服務。

宗旨及目標

- 幫助紅斑狼瘡、牛皮癬、硬皮症、癌症等長

期病患者，對所患病症有更多認識，助其自

助，增強信心，積極抗病，重投社會，服務

社群

- 提倡健康人士防患未然，認識各種疾病，達

到自我保健及關心

- 鼓勵公眾人士關懷及支持長期病患者

服務對象

長期病患者

服務

分享及交流會、復康課程、專題講座及工作

坊、探訪、社區健康教育工作、關懷及支援小

組、「十大再生勇士」選舉、提供免費中醫、

按摩、推拿、剪髮等服務

背景

1990年，香港工人健康中心由關注馬鞍山石礦

工人之職業安全及健康開始，組成關注矽肺病

人小組。在工人健康中心的協助下，一群肺積

塵病患者和家屬組織起來，爭取改善法例，使

病患者能獲得合理的賠償，以改善生活。肺積

塵互助會於1992年正式成立為獨立機構，有獨

立的執委會，並註冊為非牟利慈善團體，同時

亦是香港社會服務聯會和香港公益金的會員機

構。

宗旨及目標

- 關注肺積塵病患者的福祉，並協助改善病患

者的生活質素

- 建立會員之間的互助互愛精神

- 提供適切服務，使病患者在心理和生理方面

獲得全面復康

- 倡導肺積塵病的預防和復康政策

服務對象

肺積塵病患者

服務

法律意見、賠償咨詢、社交活動、健康檢查、復

康計劃、個別輔導、探訪、推廣預防及教育活

動

BackgroundThe Association is a voluntary agency established in 1992 by a group of pneumoconiosis sufferers, their family members, doctors and those who concern about the well-being of pneumoconiosis sufferers. The Association is a member agency of Hong Kong Council of Social Service and the Community Chest.

Aims and Objectives- to enhance self-help spirit among sufferers and to improve their

quality of life- to build up the mutual help spirit among members- to provide appropriate services to assist patients recover from all

aspects- to advocate prevention & rehabilitation policy towards

pneumoconiosis

Service TargetPneumoconiotic patients

ServiceLegal advice, enquiries on compensation, social gathering, health-check, rehabilitation programmes, individual counselling, home and hospital visits, preventive project and education programmes

BackgroundRegeneration Society, established in 1991, is a non-profit organization and recognized charitable body that promotes the prevention of health problems and helps people who are chronically ill to become self-reliant.

Aims and Objectives- to promote rehabilitation education for chronic patients to

understand their diseases, and facilitate them to attain self-help strategies to strive for convalescence

- to raise health consciousness among the general public- to encourage care and support for chronic patients from the

general public

Service TargetPatients of various chronic illnesses

ServiceKnowledge and experiences sharing session, health classes, health care seminars, hospital visits, health education, concern and support groups, Hong Kong 10 Outstanding Warriors of Regeneration Award, free services for Chinese medicine consultation, massage, energy-healing, hair-cutting,etc




1997 230 香港協癇會

Hong Kong Epilepsy Association


2338 25162338 [email protected]://hk.geocities.com/rmha_pmh九龍橫頭磡邨宏禮樓地下 (社區復康網絡)G/F, Wang Lai House, Wang Tau Hom Estate, Kowloon(Community Rehabilitation Network)

1993 1138 腎友互助協會

Renal Mutual Help Association

21 22

背景

香港協癇會是由癲癇症病患者及其家屬組成，

是義務性質參與服務的病人自助組織。

宗旨及目標

重視自助、互助、助人精神的體現。目標為：

- 發揮癲癇症病患者及其家屬互助精神

- 推廣社會大眾正確認識癲癇症，並給予癲癇

症病患者關懷

- 關注癲癇症病患者的福利及爭取合理權益

服務對象

癲癇症病患者及其家屬

服務

醫學講座、病人權益教育及倡導工作、社交康

樂活動、刊物出版、地區互助小組、社區教育

活動

背景

腎友互助協會是一群在瑪嘉烈醫院接受治療的

腎病病患者於1993年成立的自助組織。

宗旨及目標

藉著病患者間的互助自助精神，促進彼此的溝

通及扶持，使病患者克服困擾，積極面對病患

及開拓前路。目標為：

- 發揮腎病患者自助互助的精神

- 促進社會各界人士對腎病患者的認識及關懷

- 爭取腎病患者福利及合理權益

服務對象

腎病病患者及其家屬

服務

醫院探訪及家訪會員、定期復康講座、定期康

樂活動、出版會員通訊、參與社會服務、協助

會員購買輔助醫療用品

BackgroundRenal Mutual Help Association is a self help group formed by renal patients under treatment at Princess Margaret Hospital in 1993.

Aims and ObjectivesThe Association aims at developing the self-support spirit, cooperation, communication and mutual help among patients, with a view to enable them to overcome the frustration and face the nephropathy more positively in their life. The objectives are:

- to exploit renal patient’s self support and cooperation spirit- to expedite the community to recognize and care about the renal

patients- to fight for the renal patient’s rational benefits and rights

Service TargetRenal patients and their families

ServiceHospital visit and home visit, regular health talks, regular recreational activities, newsletters, community services

BackgroundHong Kong Epilepsy Association is a self-help organization of people with epilepsy. The members voluntarily participate in the service of the organization.

Aims and ObjectivesThe group aims at striving for self-help, mutual aid and help others. The objectives are:

- to promote the sense of mutual support among people with epilepsy and their family members

- to promote the understanding and concern of the public about epilepsy

- to advocate for the welfare and rights of people with epilepsy and their family members

Service TargetPeople with epilepsy and their families

ServiceMedical seminars, patients’ right education and advocacy, social and recreational activities, publication, regional mutual aid self-help groups, community education programmes





2307 82572307 [email protected]九龍李鄭屋邨孝廉樓地下 (社區復康網絡)G/F, Hau Lim House, Li Cheng Uk Estate, Kowloon(Community Rehabilitation Network)

1997 597 新健社

The Hong Kong Stroke Association


2868 15652892 [email protected]九龍黃大仙下邨龍昌樓C翼2-8號地下 (癌協綜合服務中心)Unit 2-8, Wing C, G/F, Lung Cheong House, Lower Wong Tai Sin Estate, Kowloon(CancerLink Support and Resource Centre)

1993 2500

香港新域會The New Horizon Club of Hong Kong

23 24

背景

香港新域會是一個為癌症病患者及其家屬而成立的自助組織，於1989年由幾位乳癌康復者籌組而成，致力為癌症病患者及其家屬提供適切的服務。香港新域會並於1993年註冊成為非牟利的慈善團體。

宗旨及目標

- 促進癌症病患者及其家屬的自助互助精神- 提供支援服務，協助病患者及家庭處理因病

帶來的問題- 提高公眾人士對癌症常識的認識和預防 - 教育癌症病患者培養健康的生活習慣及積極

的生活態度- 為癌症病患者爭取福利及合理權益

服務對象

癌症病患者及其家屬

服務- 關懷服務 : 義工探訪、送湯、家居支援服務、

同路人分享、復發病人支援服務、外科手術咨詢服務、長者關懷服務、地區維繫服務

- 康復課程 : 保健運動班、情緒健康班、抗癌營養班、中藥常識班、心靈健康班

- 癌症教育講座- 會員維繫服務 : 興趣班、分區活動、康樂活

動、體育活動- 病人權益教育

背景

新健社由一班中風的病友發起組織的一個中風

患者及家屬互助社，在1997年正式註冊成為獨

立慈善自助組織，是全港第一個純中風患者及

家屬的組織。

宗旨及目標

- 發揮中風患者及家屬互助精神

- 推廣社會人士對中風的認識和關懷

- 爭取中風患者的福利和合理權益

服務對象

中風病患者及其家屬

服務

醫院探訪、醫療健康講座、健康檢查、心聲分

享、社交及康樂活動、新健之聲季刊 ( 會員通

訊及健康資訊 )

BackgroundThe Hong Kong Stroke Association, a support and mutual help group, was established by a group of stroke suffers and their family members and was registered as an independent charity organization in 1997.

Aims and Objectives- to facilitate mutual help among stroke sufferers and their families- to promote an awareness of stroke to the public- to campaign for rights and benefits for stroke sufferers

Service TargetStroke patients and their families

ServiceHospital visits, health care talks, health checks, experience sharing sessions, social and recreational activities, newsletter (news and health care information)

BackgroundThe New Horizon Club of Hong Kong is a self help organization of cancer patients, which was founded in 1989 by a small group of breast cancer survivors and was registered as an independent charity society in 1993.

Aims and Objectives- to develop a self help and mutual help spirit among cancer

patients and their family members- to provide support for patients and families to handle problems

caused by the illness- to increase public awareness towards the knowledge of cancer

treatment and prevention- to educate our patients to develop a healthy living style- to fight for a better right for patients in matter related to health care

and welfare

Service TargetCancer patients and their families

Service- Patients Concern: volunteers visit, soup delivery services, short

term home help services, patients sharing, consultation services for relapsed patients, surgery consultation services, elderly services, regional support services

- Rehabilitative Class: exercise classes, emotional management classes, health diet classes, herbal medicine classes, spiritual management classes

- Educational Talks- Members Cohesiveness: interest classes recreational programs,

regional programs, sports activities- Patients Advocacy







2361 69972390 [email protected]九龍李鄭屋邨孝廉樓地下 (社區復康網絡)G/F, Hau Lim House, Li Cheng Uk Estate, Kowloon(Community Rehabilitation Network)

1993 451 慧進會

Self Help Group for the Brain Damaged


2779 04002779 [email protected] www.newvoice.org.hk九龍石硤尾邨第19座平台222-224室Unit 222-224, Podium Level, Block 19, Shek Kip Mei Estate, Kowloon

1984 1969 香港新聲會

The New Voice Club of Hong Kong

25 26

背景

慧進會是由腦部受損者、其家屬及義工於1993年組成的一個自助組織。

宗旨及目標

達致守望相助，協助腦部受損人仕獲得需要的

知識、照顧技巧，情緒支持，與擴濶社交圈子。

目標為：

- 發揮會員間自助與助人之共濟精神，提高

彼此的士氣，共同奮鬥克服困難

- 協助遭受腦部創傷者及家人，能坦然地面

對疾病及促進病患者與家人之溝通和適應

- 增進適切的腦科常識及資料，交流處理生

活難題的方法等，以幫助會員再次融入社會

服務對象

腦部受損者

服務

分享交流聚會、醫療復康講座、康樂及社交活

動、探訪組、興趣班、出版會訊、互助小組、

復康自助課程

背景

香港新聲會於1984年成立，同年根據社團條例

註冊。經過八年的努力，香港新聲會在1992年開始獲香港癌症基金會及香港公益金贊助，並

於2003年轉營為有限公司註冊。

宗旨及目標

以自助互助精神協助服務對象復聲及全面復

康，以重投社會。

服務對象

無喉者及喉癌病患者

服務

復聲研討班、醫院探訪及家訪、地區支持小組

及互助支援小組、健體班、康樂話動、迎新會、

月會及健康講座、集體購買醫療器材、借用及

維修服務、參與亞洲無喉者聯會及國際無喉者

協會、探訪交流、培訓工作、參與國際會議及

社區教育活動、印制會訊、單張及小冊子、參

與政策倡導工作

BackgroundThe Club was established and registered under the Societies Ordinance in 1984. Since 1992, the organization has gained the support from the HK Community Chest and the HK Cancer Fund. In 2003, the club was registered under the Companies Ordinance.

Aims and ObjectivesTo assist laryngectomees to regain their voice and to reintegrate into the community through the promotion of self help as well as mutual help spirit

Service TargetLaryngectomees & Laryngeal Cancer Survivors

ServiceVoice rehabilitation classes, voluntary visits, district support group & mutual support group, sports & health programmes, recreational programmes, orientation programmes, monthly meeting & health talk, bulk purchase, repairing & equipment service, member of Asian Federation of Laryngectomees Association & the International Laryngectomee Association, exchange tour, training, participation in related international conference & public education, publishing newsletter and related information, participation in patients’ advocacy movement

BackgroundSelf Help Group for the Brain Damaged was formed by patients, their families and volunteers in 1993.

Aims and ObjectivesThe Group aims at reaching the purpose of mutual support, providing relevant information and caring techniques about brain injury, offering a supportive channel for the patients and their families to express themselves, as well as helping the patients to enlarge their social network. The objectives are :

- to develop the spirit of self-help and mutual help among the members, enhance their morale, and encourage them overcome the difficulties together

- to assist the persons with brain injury and their families to accept and face the illness positively, to enable them to increase understanding of one another so as to improve their communications

- to broaden members’ knowledge and information on brain injury and share rehabilitation experience so as to help them to reintegrate in the society

Service TargetBrain Damaged patients

ServiceSharing groups, medical and rehabilitation seminars, recreational and social activities, visiting groups, interest classes, newsletter, mutual aid self help groups, rehabilitation self-help courses


成立年份 Year of Establishment : 會員人數 Membership : 妍康會

Yin Hong Club

2854 91492323 [email protected]九龍黃大仙下邨龍昌樓地下C翼2-8號 (癌協綜合服務中心) Unit 2-8, Wing C, G/F, Lung Cheong House, Lower Wong Tai Sin Estate, Kowloon(CancerLink Support and Resource Centre)

1996 280

成立年份 Year of Establishment : 會員人數 Membership : 香港地中海型貧血病協會

The Thalassaemia Association of Hong Kong

2889 83992818 [email protected]香港薄扶林道102號瑪麗醫院護士宿舍B1 座201-203室Rm 201-203, Nurses’ Quarters Block B1, Queen Mary Hospital, 102 Pokfulam Road, Hong Kong

1982 190

27 28

背景

妍康會是由一群乳癌病患者及康復者，在瑪麗

醫院病人資源中心輔導工作及義工服務的社工

及醫護人員的協助下，於1996年成立，並註冊

為非牟利的組織及享有稅務豁免。

宗旨及目標

- 發揮乳癌病友互助精神，彼此支持

- 促進乳癌病友與其家屬／朋友的溝通、互相

關懷、接納和適應

- 鼓勵乳癌病友積極面對人生，從而建立自信，

重投社會

- 推廣社會大眾對乳癌病人的正確認識及關懷

- 爭取乳癌病人福利及合理權益

服務對象

乳癌病患者及其家屬

服務

定期聚會、醫院探訪、戶外康樂活動、興趣班

背景

香港地中海型貧血病協會前身是香港地中海型

貧血病家長互助會，由一群地中海型貧血病患

者及家長組成，於1982年經社團條例註冊成立。

宗旨及目標

- 加強醫護人士與家長溝通

- 促進地中海貧血病患者健康地成長

- 鼓勵家長間互助及了解

- 提升本地地中海型貧血病的醫療及護理水平

- 提供福利予地中海型貧血病患者

服務對象

地中海貧血病患者及其家屬

服務

醫院探訪、定期聚會、教育性講座、康樂活動、代會員訂購醫療用品、公眾教育

BackgroundThe Thalassaemia Association of Hong Kong, previously named The Cooley’s Anemia Association of Hong Kong, was established by the thalassaemia patients and their parents and was registered under the Societies Ordinance in 1982.

Aims and Objectives- to strengthen communication between medical staff and patients- to enhance the healthy growth of thalassaemia patients- to encourage mutual help and understanding among parents- to raise the standard of care and treatment in Hong Kong- to provide welfare for thalassaemia patients

Service TargetThalassaemia patients and their families

ServiceHospital visit, regular meetings; educational talk, recreational activities, purchase thalaset for patients, public education

BackgroundYin Hong Club is a self-help group established in 1996 by a group of breast cancer patients with the support from Patients Resource Centre at Queen Mary Hospital.

Aims and Objectives- to generate the spirit of mutual help among breast cancer patients

and to support each other- to enhance communication, care, acceptance and adaptability

between breast cancer patients and their family members- to encourage breast cancer patients to live positively, to build up

confidence and to re-enter society- to promote the general public’s understanding of and concern for

breast cancer patients- to fight for the welfare and the rights of breast cancer patients

Service TargetBreast cancer patients and their families

ServiceRegular gatherings, hospital visits, outdoor recreational activities, various interest groups




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